Dr. Srinivas Namineni shares three practical tips on nitrous oxide inhalation sedation and explains how it benefits children and clinicians.
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Andhra Pradesh launches stakeholder discussions on a state policy for rare diseases, bringing together government, experts and patient groups.
Andhra Pradesh Rare Disease Policy, DME Andhra Pradesh, Rare Disease Registry, Universal Neonatal Screening, Centers of Excellence, NTRUHS Vijayawada, Rare Disease Stakeholder Meeting, Andhra Pradesh Healthcare Policy, NGO Engagement, Patient Advocacy Groups, Rare Disease Initiatives India, Medical Education Andhra Pradesh
India now has 15 Centres of Excellence for rare diseases under NPRD 2021 with the addition of RIMS Imphal, AIIMS Patna and Assam Medical College.
Join the Global Albinism Alliance community meeting in Delhi on May 4, 2026. Open to persons with albinism and families. Register now to attend.
IORD expresses interest in joining the South East Asia Rare Disease Initiative Task Force Steering Committee
This is a transcribed speech of Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala, delivered at the World Rare Disease Day 2026 event in Hyderabad, focusing on rare ophthalmic disorders.
IORD marked World Rare Disease Day 2026 highlighting rare ophthalmic disorders, stressing early diagnosis, better referrals, and expanded genetic, multidisciplinary care with expert participation.
IORD will host a World Rare Disease Day 2026 conference in Hyderabad on rare ophthalmic conditions, with LVPEI and Rainbow Children’s Hospital.
IORD proposes a Section 8, CSR-supported public-interest pharmaceutical model to ensure affordable access to orphan drugs for millions of Indian patients.