World Rare Disease Day-2022
- World Rare Disease Day-2025
- World Rare Disease Day-2024
- IORD Rare Disease Webinar February-2021
- World Rare Disease Day-2026
- World Rare Disease Day-2022
- IORD Webinar 2020: Need for Essential Medicines For Rare Diseases
- World Rare Disease Day 2020 Video Gallery
- World Rare Disease Day 2019 Video Gallery
- World Rare Disease Day 2018 Video Gallery
World Rare Disease Day 2022
Hyderabad Joins the Global Awareness Campaign
The Indian Organisation for Rare Diseases (IORD), in association with the Telangana Information & Public Relations Department, marked World Rare Disease Day 2022 in Hyderabad through a media conference and the illumination of prominent city landmarks. The initiative brought together medical experts and media representatives to highlight rare disease challenges, promote awareness and advocate better diagnosis, treatment and support for affected individuals and families. Watch the video presentations and highlights from the event below.
Hyderabad Heritage Monuments Illuminate for World Rare Disease Day 2022
Hyderabad’s iconic Moazzam Jahi Market and Durgam Cheruvu Cable Bridge were illuminated simultaneously in the colours of Rare Disease Day to raise awareness and show solidarity with the rare disease community. Watch the video capturing this special illumination of the city’s heritage landmarks.
Dr. Ramaiah Muthyala’s Media Address | World Rare Disease Day 2022
On World Rare Disease Day 2022, the Indian Organisation for Rare Diseases (IORD), in collaboration with the Telangana Information & Public Relations Department, organised a press conference in Hyderabad. In this video, IORD CEO and President Dr. Ramaiah Muthyala briefs the media on key developments and issues concerning the rare disease community, followed by the illumination of Hyderabad’s iconic landmarks in Rare Disease Day colours.
Expert Media Briefing on Rare Disease Diagnosis and Treatment | World Rare Disease Day 2022
The Indian Organisation for Rare Diseases (IORD), in collaboration with the Telangana Information & Public Relations Department, organised a press conference in Hyderabad to mark World Rare Disease Day 2022. In this video, surgical oncologist Dr. Geetha Nagasree N and Dr. Amaresh Rao Malempati, Professor and Head of CTVS at NIMS and Director of IORD, brief the media on advances in diagnostic technologies, challenges in diagnosing extremely rare diseases, treatment and other concerns of the rare disease community.