Prof. Ramaiah Muthyala presents IORD’s blueprint for a Rare Disease Centre of Excellence in Andhra Pradesh at WZPEDICON-GUJNEOCON Conference 2026.
Blog
Andhra Pradesh Rare Disease Policy, DME Andhra Pradesh, Rare Disease Registry, Universal Neonatal Screening, Centers of Excellence, NTRUHS Vijayawada, Rare Disease Stakeholder Meeting, Andhra Pradesh Healthcare Policy, NGO Engagement, Patient Advocacy Groups, Rare Disease Initiatives India, Medical Education Andhra Pradesh
IORD expresses interest in joining the South East Asia Rare Disease Initiative Task Force Steering Committee
IORD urged inclusive global action on rare diseases at an Asia-Pacific webinar, emphasizing regional collaboration, policy implementation, and shared commitment to transform hope into tangible outcomes for patients.
Kakatiya Medical College students presents research at Armed Forces Medical College, exposing diagnostic delays, systemic gaps, and patient struggles in India’s rare disease care.
IORD CEO and President Prof. Ramaiah Muthyala calls for policy reforms at the World Orphan Drug Congress 2025, addressing access barriers, costs, and solutions for rare disease care.
IORD marks World Rare Disease Day 2025 with a conference in Vijayawada, advocating policy action, improved diagnosis, treatment access, and greater awareness through expert and stakeholder participation.
IORD CEO & President Prof. Ramaiah Muthyala calls for policy reforms in Andhra Pradesh, emphasizing improved rare disease healthcare, early diagnosis, and stronger government support for affected patients.
IORD and RJS launched a 20-day rare disease awareness campaign ahead of World Rare Disease Day 2025, promoting education, advocacy, and public engagement through webinars and outreach initiatives.
IORD and RJS PBH announce an expert-led webinar on rare diseases, focusing on the urgent need for a unified approach to address challenges in India.