IORD urged inclusive global action on rare diseases at an Asia-Pacific webinar, emphasizing regional collaboration, policy implementation, and shared commitment to transform hope into tangible outcomes for patients.
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Kakatiya Medical College students presents research at Armed Forces Medical College, exposing diagnostic delays, systemic gaps, and patient struggles in India’s rare disease care.
IORD CEO and President Prof. Ramaiah Muthyala calls for policy reforms at the World Orphan Drug Congress 2025, addressing access barriers, costs, and solutions for rare disease care.
IORD marks World Rare Disease Day 2025 with a conference in Vijayawada, advocating policy action, improved diagnosis, treatment access, and greater awareness through expert and stakeholder participation.
IORD CEO & President Prof. Ramaiah Muthyala calls for policy reforms in Andhra Pradesh, emphasizing improved rare disease healthcare, early diagnosis, and stronger government support for affected patients.
IORD and RJS launched a 20-day rare disease awareness campaign ahead of World Rare Disease Day 2025, promoting education, advocacy, and public engagement through webinars and outreach initiatives.
IORD and RJS PBH announce an expert-led webinar on rare diseases, focusing on the urgent need for a unified approach to address challenges in India.
Join an expert-led webinar exploring the complexities of rare diseases, featuring insights from IORD CEO & President Prof. Ramaiah Muthyala Rare diseases are a pressing global health issue, with an estimated 7,000 to 8,000 rare diseases identified worldwide. These conditions affect a relatively small percentage of the population, making awareness, diagnosis, and treatment especially challenging.Read more
Registration is Now Open for the Rare Diseases Nurses Network Webinar Hosted by the Indian Organisation for Rare Diseases (IORD). It will Highlight the Critical Role Nurses Play in Rare and Undiagnosed Diseases Worldwide. Rare and undiagnosed diseases (RUD) have gained global recognition as a significant health priority following the United Nations (UN) Resolution onRead more
At the World Orphan Drug Congress 2024, Indian Organization for Rare Diseases President Ramaiah Muthyala said India produces APIs for all orphan drugs yet access remains limited and costly.