Dr. Srinivas Namineni shares three practical tips on nitrous oxide inhalation sedation and explains how it benefits children and clinicians.
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Andhra Pradesh launches stakeholder discussions on a state policy for rare diseases, bringing together government, experts and patient groups.
Andhra Pradesh Rare Disease Policy, DME Andhra Pradesh, Rare Disease Registry, Universal Neonatal Screening, Centers of Excellence, NTRUHS Vijayawada, Rare Disease Stakeholder Meeting, Andhra Pradesh Healthcare Policy, NGO Engagement, Patient Advocacy Groups, Rare Disease Initiatives India, Medical Education Andhra Pradesh
This is a transcribed speech of Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala, delivered at the World Rare Disease Day 2026 event in Hyderabad, focusing on rare ophthalmic disorders.
India is emerging as a global leader in rare disease management, driven by IORD’s efforts since 2005 to advocate, raise awareness, and support millions affected by rare conditions, writes Dr Krishnaji Rao.
IORD urged inclusive global action on rare diseases at an Asia-Pacific webinar, emphasizing regional collaboration, policy implementation, and shared commitment to transform hope into tangible outcomes for patients.
Delhi High Court clears Natco to launch Risdiplam generic version Natsmart, making SMA treatment affordable for thousands.
IORD highlights gaps in rare disease care, with Prof. Ramaiah Muthyala noting progress under NPRD but stressing persistent challenges in diagnosis, treatment, and need for disease-specific strategies.
In a landmark ruling, the Delhi High Court ordered the creation of a ₹974 crore National Fund for Rare Diseases for 2024–26, emphasizing patient-centric policies, expanded treatment access, and funding reforms.
The Delhi High Court has introduced a landmark Standard Protocol to streamline rare disease management, ensuring continuous availability of therapies, local drug manufacturing, and time-bound treatment delivery.