The following is a translated excerpt from the speech made by IORD CEO & President Prof Ramaiah Muthyala at World Rare Disease Day-2024 conference organized by IORD at IMA Hall, Khammam on March 3.
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In Khammam, Indian Organization for Rare Diseases hosted a World Rare Disease Day 2024 conference with Swarna Bharat Trust, bringing together patients, experts, and stakeholders.
The youngest Bikeathon participant was Korukonda lyosha, aged only eight years, while the oldest walkathon participant was Subhash Pande, aged 76 years at IORD’s Bikeathon │ Walkathon │ For Rare
HAEMOPHILIA: An Inherited Condition (This is an abridged version of the presentation delivered by Dr V. Chandrasekhar, MD, FICP, Professor in General Medicine, Kakatiya Medical College & Superintendent, Mahatma Gandhi Memorial Hospital, Warangal, Telangana at the ‘Dr N Srinivasa Rao Memorial Symposium – Rare Diseases & Alternative Treatment’ organized by IORD at Hyderabad on 25thRead more
The Ataxia Awareness Society (AAS) – an NGO dedicated to spread awareness about the rare disease, help the sufferers and encourage research in this field – is organising a webinar on Ataxia on 18th December (Saturday) at 7:30 PM IST. Being organised in collaboration with the Indian Organisation for Rare Diseases (IORD) & AAS, theRead more
State Senate Leaders Join Community Campaign Celebrating Indian-American Contributions Minnesota, August 15, 2021: In a remarkable move, the Minnesota State House and Senate have come together to introduce bipartisan legislation that officially marks August 15 as India Day. This initiative acknowledges the vital contributions of Indian Americans in the state and offers a platform toRead more
You are not alone as we all are one! Doctors, Survivors, Expert Speakers, Healthcare Staff, Patients’ Organizations, Rare Disease Patients, Researchers, Policy Makers, Rare Disease Volunteers, Parents and Students enthusiastically participated in IORD’s conference on “Raising The Awareness: Prevention of Rare Diseases” in Hyderabad on 28 February 2020. That’s the takeaway from Indian Organization forRead more