IORD highlights India’s rare disease crisis, with Prof. Ramaiah Muthyala urging grassroots solutions to improve access, awareness, and care for millions affected nationwide.
Blog
IORD CEO & President Dr. Ramaiah Muthyala provides insights on advancing rare disease awareness in India, stressing early diagnosis, frontline healthcare training, and integration into public health systems.
Kakatiya Medical College students presents research at Armed Forces Medical College, exposing diagnostic delays, systemic gaps, and patient struggles in India’s rare disease care.
IORD CEO and President Prof. Ramaiah Muthyala calls for policy reforms at the World Orphan Drug Congress 2025, addressing access barriers, costs, and solutions for rare disease care.
IORD CEO and President Prof. Ramaiah Muthyala delivered keynote at the RJS PBH webinar on World Health Day 2025, emphasizing global action, early care, and hope for rare disease patients.
IORD marks World Rare Disease Day 2025 with a conference in Vijayawada, advocating policy action, improved diagnosis, treatment access, and greater awareness through expert and stakeholder participation.
IORD CEO & President Prof. Ramaiah Muthyala calls for policy reforms in Andhra Pradesh, emphasizing improved rare disease healthcare, early diagnosis, and stronger government support for affected patients.
Sri M.T. Krishna Babu, IAS, Special Chief Secretary, AP, calls to strengthen rare disease care in Andhra Pradesh, emphasizing policy support, healthcare infrastructure, and improved access to diagnosis and treatment.
Dr. Vinod K. Paul, Member, NITI Aayog, calls for manufacturing drugs for selected rare diseases, emphasizing affordability, domestic production, and improved patient access.
Registration open for IORD’s World Rare Disease Day 2025 conference in Vijayawada, aiming to advance innovation, collaboration, and solutions for rare disease diagnosis, treatment, and public health.