IORD CEO and President Prof. Ramaiah Muthyala delivered keynote at the RJS PBH webinar on World Health Day 2025, emphasizing global action, early care, and hope for rare disease patients.
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IORD marks World Rare Disease Day 2025 with a conference in Vijayawada, advocating policy action, improved diagnosis, treatment access, and greater awareness through expert and stakeholder participation.
IORD CEO & President Prof. Ramaiah Muthyala calls for policy reforms in Andhra Pradesh, emphasizing improved rare disease healthcare, early diagnosis, and stronger government support for affected patients.
Sri M.T. Krishna Babu, IAS, Special Chief Secretary, AP, calls to strengthen rare disease care in Andhra Pradesh, emphasizing policy support, healthcare infrastructure, and improved access to diagnosis and treatment.
Dr. Vinod K. Paul, Member, NITI Aayog, calls for manufacturing drugs for selected rare diseases, emphasizing affordability, domestic production, and improved patient access.
Registration open for IORD’s World Rare Disease Day 2025 conference in Vijayawada, aiming to advance innovation, collaboration, and solutions for rare disease diagnosis, treatment, and public health.
IORD and RJS launched a 20-day rare disease awareness campaign ahead of World Rare Disease Day 2025, promoting education, advocacy, and public engagement through webinars and outreach initiatives.
IORD and RJS PBH announce an expert-led webinar on rare diseases, focusing on the urgent need for a unified approach to address challenges in India.
Rare diseases, though affecting a small percentage of the population, represent a significant public health challenge in India. The Indian Organisation for Rare Diseases (IORD) has been at the forefront of advocating for policies, raising awareness, and improving treatment access. Rare diseases not only lead to the loss of human productivity but also place aRead more
The following excerpt is from a presentation delivered by Krishnaji Rao Muthyala, Secretary of the Indian Organization for Rare Diseases (IORD), at the Rare Diseases International (RDI) Membership Meeting held on October 21-22, 2024, in Barcelona, Spain. Barcelona, Spain – There is a need for continued collaboration and innovation to create a more equitable healthcareRead more