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Countdown Starts for World Rare Disease Day-2023 with Multi-lingual Awareness videos!

    Home IORD Updates Countdown Starts for World Rare Disease Day-2023 with Multi-lingual Awareness videos!
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    Official video of World Rare Disease Day-2023

    Countdown Starts for World Rare Disease Day-2023 with Multi-lingual Awareness videos!

    By IORD | IORD Updates, Rare Disease News | 0 comment | 15 December, 2022 | 1

    The 100-day countdown for the World Rare Disease Day-2023 celebration, which falls on February 28, has started with the right earnestness.

    This year, for creating awareness among the people, short multi-lingual animation videos in several world languages with subtitles were launched for easy understanding for the local population. They include Indian languages like Hindi, Bengali, Kannada and Telugu.

    While making a call for lighting up in rare colours on 28 February in solidarity with 300 million rare disease patients in the world, the three-minute animation videos highlight the importance of creating equitable opportunities and access to health for all rare disease patients.

    In the absence of the right health infrastructure, expertise and empathy, a rare disease patient is more likely to experience misdiagnosis, treatment inequality and isolation.

    IORD, Rare Disease, Rare Disease Day, World Rare Disease Day, World Rare Disease Day 2023

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    Related Post

    • Indian Organisation for Rare Diseases (IORD) CEO and President Dr. Ramaiah addressing the audience on Rare Ophthalmic Disorders at World Rare Disease Day 2026 event organised at Hyderabad on 28 February in collaboration with L V Prasad Eye Institute (LVPEI) and Rainbow Children’s Hospital.

      World Rare Disease Day 2026: Dr. Ramaiah Muthyala Focuses on Rare Ophthalmic Disorders

      By IORD | 0 comment

      This is a transcribed speech of Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala, delivered at the World Rare Disease Day 2026 event in Hyderabad, focusing on rare ophthalmic disorders.

    • Inaugural session of World Rare Disease Day 2026 conference in Hyderabad, with experts from IORD, LVPEI, and Rainbow Children’s Hospital

      India: Rare Ophthalmic Disorders Take Centrestage at World Rare Disease Day-2026

      By IORD | 0 comment

      IORD marked World Rare Disease Day 2026 highlighting rare ophthalmic disorders, stressing early diagnosis, better referrals, and expanded genetic, multidisciplinary care with expert participation.

    • On World Rare Disease Day 2026, IORD, along with LV Prasad Eye Institute and Rainbow Children’s Hospital, is hosting a scientific conference in Hyderabad focused on Rare Ophthalmic Disorders

      IORD to Host World Rare Disease Day 2026 Conference Focused on Rare Ophthalmic Conditions

      By IORD | 0 comment

      IORD will host a World Rare Disease Day 2026 conference in Hyderabad on rare ophthalmic conditions, with LVPEI and Rainbow Children’s Hospital.

    • In this letter, IORD urges the Government of India to ensure affordable access to orphan drugs for rare disease patients through a public-interest, Section 8 non-profit pharmaceutical model supported by CSR funding.

      Bridging India’s Rare Disease Treatment Gap Through Public-Interest Pharmaceuticals

      By IORD | 0 comment

      IORD proposes a Section 8, CSR-supported public-interest pharmaceutical model to ensure affordable access to orphan drugs for millions of Indian patients.

    • IORD leaders urge inclusive, global collaboration to turn the WHA Rare Disease Resolution into real action at the RDI Asia-Pacific Webinar on October 9.

      From Hope to Action: IORD Calls for Inclusive Global Action on Rare Diseases

      By IORD | 0 comment

      IORD urged inclusive global action on rare diseases at an Asia-Pacific webinar, emphasizing regional collaboration, policy implementation, and shared commitment to transform hope into tangible outcomes for patients.

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