Dr. Vinod K. Paul, Member, NITI Aayog, calls for manufacturing drugs for selected rare diseases, emphasizing affordability, domestic production, and improved patient access.
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Registration open for IORD’s World Rare Disease Day 2025 conference in Vijayawada, aiming to advance innovation, collaboration, and solutions for rare disease diagnosis, treatment, and public health.
IORD and RJS PBH announce an expert-led webinar on rare diseases, focusing on the urgent need for a unified approach to address challenges in India.
The following is a translated excerpt from the speech made by IORD CEO & President Prof Ramaiah Muthyala at World Rare Disease Day-2024 conference organized by IORD at IMA Hall, Khammam on March 3.
Join us to be the voice of 300 million affected people worldwide on World Rare Disease Day-2023. The not-for-profit Indian Organization for Rare Diseases (IORD) is excited to invite you all to an awareness bikeathon and walkathon being organised at the Necklace Road, Hyderabad on 26th February at 6.30 AM on Sunday. Please register forRead more
The 100-day countdown for the World Rare Disease Day-2023 celebration, which falls on February 28, has started with the right earnestness. This year, for creating awareness among the people, short multi-lingual animation videos in several world languages with subtitles were launched for easy understanding for the local population. They include Indian languages like Hindi, Bengali,Read more
The Indian Organization for Rare Diseases (IORD) is thrilled to call attention to the Word Rare Disease Day-2022 by organizing series of events to raise awareness about the issues of millions of Indians living with a rare disease. The World Rare Disease Day is observed every year on the last day of February (28th February).Read more
Reproduced below is the letter written to Prime Minister Shri Narendra Modi ji by IORD requesting for inclusion of World Rare Disease Day as a topic in the upcoming Mann Ki Baat Dear Shri Narendra Modi ji Sir, Sub: Request Prime Minister Shri Narendra Modi Ji to speak to the nation on the occasion ofRead more
With the idea of raising awareness for people living with a rare disease, an official video marking the World Rare Disease Day-2022 falling on February 28 was globally launched on January 31. The awareness campaign is jointly supported by 67 National Alliance patient organisations from across 59 countries including the Indian Organisation for Rare DiseasesRead more
Source: Vaartha https://www.vaartha.com/telangana/ts-minister-etala-rajender-attends-world-rare-disease-day-event/Read more