Dr. Srinivas Namineni shares three practical tips on nitrous oxide inhalation sedation and explains how it benefits children and clinicians.
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Mrs. Ramalakshmi of Bharath MD Foundation outlines key recommendations to strengthen rare disease care in Andhra Pradesh through early diagnosis, patient registries and integrated support.
Andhra Pradesh launches stakeholder discussions on a state policy for rare diseases, bringing together government, experts and patient groups.
IORD expresses interest in joining the South East Asia Rare Disease Initiative Task Force Steering Committee
IORD marked World Rare Disease Day 2026 highlighting rare ophthalmic disorders, stressing early diagnosis, better referrals, and expanded genetic, multidisciplinary care with expert participation.
IORD will host a World Rare Disease Day 2026 conference in Hyderabad on rare ophthalmic conditions, with LVPEI and Rainbow Children’s Hospital.
IORD proposes a Section 8, CSR-supported public-interest pharmaceutical model to ensure affordable access to orphan drugs for millions of Indian patients.
India is emerging as a global leader in rare disease management, driven by IORD’s efforts since 2005 to advocate, raise awareness, and support millions affected by rare conditions, writes Dr Krishnaji Rao.
In this Prime9 News panel discussion, IORD experts addressed diagnostic challenges, low awareness, and urgent policy gaps in managing rare diseases that often remain undiagnosed despite severity.
IORD emphasized the legal fraternity’s role in rare disease awareness, with Dr. Ramaiah Muthyala urging lawyers to support advocacy, patient rights, and public education initiatives.