IORD submits supplementary rare disease patient-safety indicators to NITI Aayog to strengthen quality, continuity and safety of care.
Blog
Prof. Ramaiah Muthyala presents IORD’s blueprint for a Rare Disease Centre of Excellence in Andhra Pradesh at WZPEDICON-GUJNEOCON Conference 2026.
In this interview, Dr. Krishnaji Rao shares his journey from pharmaceutical innovation to rare disease advocacy, discussing IORD’s role in shaping policy, promoting awareness and improving access to care for people living with rare diseases in India.
Dr. Srinivas Namineni shares three practical tips on nitrous oxide inhalation sedation and explains how it benefits children and clinicians.
Mrs. Ramalakshmi of Bharath MD Foundation outlines key recommendations to strengthen rare disease care in Andhra Pradesh through early diagnosis, patient registries and integrated support.
Andhra Pradesh launches stakeholder discussions on a state policy for rare diseases, bringing together government, experts and patient groups.
IORD expresses interest in joining the South East Asia Rare Disease Initiative Task Force Steering Committee
IORD marked World Rare Disease Day 2026 highlighting rare ophthalmic disorders, stressing early diagnosis, better referrals, and expanded genetic, multidisciplinary care with expert participation.
IORD will host a World Rare Disease Day 2026 conference in Hyderabad on rare ophthalmic conditions, with LVPEI and Rainbow Children’s Hospital.
IORD proposes a Section 8, CSR-supported public-interest pharmaceutical model to ensure affordable access to orphan drugs for millions of Indian patients.