Telangana Health Minister Eatela Rajender Attends World Rare Disease Day in Hyderabad

IORD marked World Rare Disease Day 2026 highlighting rare ophthalmic disorders, stressing early diagnosis, better referrals, and expanded genetic, multidisciplinary care with expert participation.

India is emerging as a global leader in rare disease management, driven by IORD’s efforts since 2005 to advocate, raise awareness, and support millions affected by rare conditions, writes Dr Krishnaji Rao.

In this Prime9 News panel discussion, IORD experts addressed diagnostic challenges, low awareness, and urgent policy gaps in managing rare diseases that often remain undiagnosed despite severity.

IORD emphasized the legal fraternity’s role in rare disease awareness, with Dr. Ramaiah Muthyala urging lawyers to support advocacy, patient rights, and public education initiatives.

IORD highlights India’s rare disease crisis, with Prof. Ramaiah Muthyala urging grassroots solutions to improve access, awareness, and care for millions affected nationwide.