IORD urged inclusive global action on rare diseases at an Asia-Pacific webinar, emphasizing regional collaboration, policy implementation, and shared commitment to transform hope into tangible outcomes for patients.
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IORD emphasized the legal fraternity’s role in rare disease awareness, with Dr. Ramaiah Muthyala urging lawyers to support advocacy, patient rights, and public education initiatives.
IORD CEO & President Prof Ramaiah Muthyala presents a case study on Autosomal Recessive Congenital Ichthyosis at the Undiagnosed Disease Network Conference, highlighting collaborative genomics and patient support in rare disease care.