Registration is now open for World Rare Disease Day-2025 Conference, organized by the Indian Organisation for Rare Diseases (IORD) at FORTUNE Murali Park, Vijayawada in Andhra Pradesh on 28 February, 2025. This significant event aims to advance healthcare innovation, address rare diseases, and strengthen collaborative efforts in public health. To register for the conference, please use the below mentioned link. We look forward to your participation in this important event.
Event Details:
- Date: February 28, 2025 (Friday)
- Time: 9:30 AM onwards
- Venue: Fortune Murali Park, Vijayawada
- In-person Event
- Registration Link: Click Here
Highlights:
- Inaugural Address: Dr. Ramaiah Muthyala (President/CEO, Indian Organization for Rare Diseases) will set the tone with introductory remarks, highlighting critical initiatives for rare disease advocacy.
- Chief Guest: Hon’ble Minister for Health, Family Welfare, and Medical Education, Government of Andhra Pradesh, Sri Satya Kumar Yadav, will deliver the inaugural address, underscoring the government’s commitment to equitable healthcare and medical education reforms.
- Distinguished Speakers: Engage with thought leaders such as Dr. Vinod Paul (Member, NITI Aayog), Dr. D.S.V.L. Narasimham (Vice-Chancellor, Dr. NTR University of Health Sciences), Dr. G Samaram (Former National President, IMA), and representatives from organizations like the Indian Red Cross Society, Hemophilia Society, and Bharat MD Foundation. They include:
– Shri Y.D. Ramarao, Chairman, Indian Red Cross Society, Andhra Pradesh
– Dr. Maganti Prasad, Secretary of Hemophilia Society Vijayawada Chapter)
– Dr. K. Pattabhi Ramaiah, Kamineni Clinic, Convenor of Indian Organisation for Rare Diseases
– Shri Murali, co-founder, Bharat MD Foundation
- Interactive Session: The conference provides networking opportunities designed to bridge policy, research, and grassroots action, fostering actionable strategies to improve healthcare delivery and patient outcomes for rare disease patients.
Together, let us pave the way for a healthier, inclusive future.
About IORD:
The Indian Organisation for Rare Diseases (IORD) is a not-for-profit organization established in 2005, dedicated to representing the interests of individuals affected by rare diseases in India. Serving as an umbrella organization, IORD unites patients, support groups, healthcare providers, and policy advocates to address the unique challenges posed by rare diseases. Their mission encompasses raising awareness, promoting education and research, influencing public policy, and facilitating drug development to improve the lives of those impacted by rare conditions.
Note: Programme details are tentative and subject to change.
