Mrs. Ramalakshmi of Bharath MD Foundation outlines key recommendations to strengthen rare disease care in Andhra Pradesh through early diagnosis, patient registries and integrated support.
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Andhra Pradesh launches stakeholder discussions on a state policy for rare diseases, bringing together government, experts and patient groups.
This is a transcribed keynote address by Dr. Anil Kumar Mandal, Senior Consultant Ophthalmologist at Centre for Sight, Banjara Hills, delivered at the Indian Organisation for Rare Diseases (IORD) World Rare Disease Day 2026 event in Hyderabad, focusing on rare ophthalmic disorders.
IORD marked World Rare Disease Day 2026 highlighting rare ophthalmic disorders, stressing early diagnosis, better referrals, and expanded genetic, multidisciplinary care with expert participation.
IORD emphasized the legal fraternity’s role in rare disease awareness, with Dr. Ramaiah Muthyala urging lawyers to support advocacy, patient rights, and public education initiatives.
IORD CEO & President Dr. Ramaiah Muthyala provides insights on advancing rare disease awareness in India, stressing early diagnosis, frontline healthcare training, and integration into public health systems.
IORD CEO and President Prof. Ramaiah Muthyala calls for policy reforms at the World Orphan Drug Congress 2025, addressing access barriers, costs, and solutions for rare disease care.
IORD marks World Rare Disease Day 2025 with a conference in Vijayawada, advocating policy action, improved diagnosis, treatment access, and greater awareness through expert and stakeholder participation.
IORD CEO & President Prof. Ramaiah Muthyala calls for policy reforms in Andhra Pradesh, emphasizing improved rare disease healthcare, early diagnosis, and stronger government support for affected patients.
IORD CEO & President Prof Ramaiah Muthyala presents a case study on Autosomal Recessive Congenital Ichthyosis at the Undiagnosed Disease Network Conference, highlighting collaborative genomics and patient support in rare disease care.