IORD submits supplementary rare disease patient-safety indicators to NITI Aayog to strengthen quality, continuity and safety of care.
Blog
Prof. Ramaiah Muthyala presents IORD’s blueprint for a Rare Disease Centre of Excellence in Andhra Pradesh at WZPEDICON-GUJNEOCON Conference 2026.
In this interview, Dr. Krishnaji Rao shares his journey from pharmaceutical innovation to rare disease advocacy, discussing IORD’s role in shaping policy, promoting awareness and improving access to care for people living with rare diseases in India.
Dr. Srinivas Namineni shares three practical tips on nitrous oxide inhalation sedation and explains how it benefits children and clinicians.
Mrs. Ramalakshmi of Bharath MD Foundation outlines key recommendations to strengthen rare disease care in Andhra Pradesh through early diagnosis, patient registries and integrated support.
Andhra Pradesh launches stakeholder discussions on a state policy for rare diseases, bringing together government, experts and patient groups.
Andhra Pradesh Rare Disease Policy, DME Andhra Pradesh, Rare Disease Registry, Universal Neonatal Screening, Centers of Excellence, NTRUHS Vijayawada, Rare Disease Stakeholder Meeting, Andhra Pradesh Healthcare Policy, NGO Engagement, Patient Advocacy Groups, Rare Disease Initiatives India, Medical Education Andhra Pradesh
India now has 15 Centres of Excellence for rare diseases under NPRD 2021 with the addition of RIMS Imphal, AIIMS Patna and Assam Medical College.
Dr. Muralidhar Ramappa presented a scientific session at World Rare Disease Day,- 2026 highlighting early diagnosis, genetic insights, and integrated care approaches for rare ophthalmic disorders.
Join the Global Albinism Alliance community meeting in Delhi on May 4, 2026. Open to persons with albinism and families. Register now to attend.