Delhi: In a significant decision, the Delhi High Court has extended the tenure of the National Rare Disease Committee (NRDC) and broadened its mandate. This move aims to establish a more coordinated,
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Delhi: In a set of pathbreaking directions that is set to help the rare disease fraternity in India, the Delhi High Court has directed the Union of India to establish the National Fund for Rare Diseas
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Delhi: In a landmark judgment, the Delhi High Court ordered the setting up of a comprehensive Standard Protocol for managing rare disease cases at Centers of Excellence (CoEs). The protocol mandates c
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Rare diseases, though affecting a small percentage of the population, represent a significant public health challenge in India. The Indian Organisation for Rare Diseases (IORD) has been at the forefro
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Join an expert-led webinar exploring the complexities of rare diseases, featuring insights from IORD CEO & President Prof. Ramaiah MuthyalaRare diseases are a pressing global health issue, with an
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The following excerpt is from a presentation delivered by Krishnaji Rao Muthyala, Secretary of the Indian Organization for Rare Diseases (IORD), at the Rare Diseases International (RDI) Membership Me
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