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The Indian Organization for Rare Diseases (IORD) and the Ram-Janaki Institute Positive Broadcasting House (RJS PBH) have initiated a 20-day awareness campaign to highlight the challenges faced by individuals with rare diseases. The campaign, inaugurated by Professor (Dr.) Ramayya Muthyala, President and CEO of IORD, aims to raise awareness ahead of World Rare Disease Day on February 28, 2025.

IORD-RJS Launches 20-Day Rare Disease Awareness Campaign

New Delhi: In the run up to the World Rare Disease Day 2025 on 28 February, a 20-day awareness campaign for rare diseases was launched by the Ram-Janki Institute Positive Broadcasting House (RJS PBH),
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A webinar titled on the Urgent Need for a Unified Approach to Tackle Rare Diseases in India is being organized jointly by RJS PBH - RJS Positive Media and the Indian Organisation for Rare Diseases (IORD) on February 9 at 11.00 AM.

Join Expert-Led RJS PBH Webinar on Rare Diseases on 9th Feb

By IORD | 0 comment

A webinar titled on the "Urgent Need for a Unified Approach to Tackle Rare Diseases in India" is being organized jointly by RJS PBH - RJS Positive Media and the Indian Organisation for Rare Diseases (
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The following article is reproduced from an editorial article by Kamal Pratap Singh published in Biotech Express on page 8 in November 2024 based on the webinar ‘The Global Burden of Rare Diseases: Issues and Challenges’ addressed by Prof. Ramaiah Muthyala at the Federation of Asian Biotech Associations (FABA)-US Chapter.

Prof Ramaiah Muthyala Updates on Rare Diseases in India

By IORD | 0 comment

The following is reproduced from an editorial article by Kamal Pratap Singh published in Biotech Express on page 8 in November 2024 based on the webinar ‘The Global Burden of Rare Diseases: Issues and
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The Global Burden of Rare Diseases: Issues and Challenges' was addressed by Hyderabad-based Indian Organization for Rare Diseases founder Prof. Ramaiah Muthyala.

Affordability of drugs for rare diseases a challenge

By IORD | 0 comment

The following article is reproduced from a news article by Amrita Didyala, published in Times of India on Wednesday, December 18, 2024, based on the webinar ‘The Global Burden of Rare Diseases: Issues
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A webinar organised by the Federation of Asian Biotech Associations-US chapter highlighted the socio-economic and emotional toll on the 70 million Indians affected by rare diseases (RDs)

Webinar Highlights Challenges Presented by Rare Diseases

By IORD | 0 comment

The following article is reproduced from a news report by Shrimanshi Kaushik, published in Deccan Chronicle on Wednesday, December 18, 2024, based on the webinar ‘The Global Burden of Rare Diseases: I
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The following excerpt is from a news article by Nandita Vijayasimha, published in Pharmabiz on Saturday, December 21, 2024, based on the webinar ‘The Global Burden of Rare Diseases: Issues and Challenges’ addressed by Prof. Ramaiah Muthyala at the Federation of Asian Biotech Associations (FABA)-US Chapter.

India should focus on critical health crisis posed by rare diseases: Prof. Ramaiah Muthyala

By IORD | 0 comment

The following is reproduced from a news article by Nandita Vijayasimha, published in Pharmabiz on Saturday, December 21, 2024, based on the webinar ‘The Global Burden of Rare Diseases: Issues and Chal
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IORD-RJS Launches 20-Day Rare Disease Awareness Campaign

Join Expert-Led RJS PBH Webinar on Rare Diseases on 9th Feb

Prof Ramaiah Muthyala Updates on Rare Diseases in India

Affordability of drugs for rare diseases a challenge

Webinar Highlights Challenges Presented by Rare Diseases

India should focus on critical health crisis posed by rare diseases: Prof. Ramaiah Muthyala

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