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Prof. Ramaiah Muthyala, CEO & President of IORD, inaugurates the World Rare Disease Day 2025 conference in Vijayawada by lighting the ceremonial lamp in the presence of dignitaries.

World Rare Disease Day 2025: IORD Advocates for Policy & Awareness

By IORD | 0 comment
Vijayawada: The Indian Organization for Rare Diseases (IORD), a non-profit advocacy body, convened a critical conference titled “RAISE THE AWARENESS - RARE DISEASES: Advocate Public Policy, Promote Di
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This is a transcribed speech of Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala delivered at the World Rare Disease Day 2025 conference in Vijayawada, organized by the IORD.

Prof Ramaiah Muthyala: A Call for Policy Change and Rare Disease Healthcare in Andhra Pradesh

By IORD | 0 comment
This is a transcribed speech of Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala delivered at the World Rare Disease Day 2025 conference in Vijayawada, organized
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This extract is from a poster presented by Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala, titled: “Role of Patient Support Organizations and Collaborative Genomics Programs in Enabling Participatory Medicine for Rare Diseases in India: A Case Study of Autosomal Recessive Congenital Ichthyosis” at the Undiagnosed Disease Network Conference, South Korea (Sept 4–6, 2024).

Undiagnosed Disease Network Conference – Congenital Ichthyosis Case Study from India

By IORD | 0 comment
This extract is from a poster presented by Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala, titled: “Role of Patient Support Organizations and Collaborative Geno
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At the World Rare Disease Day 2025 conference in Vijayawada organised by Indian Organisation for Rare Diseases, Sri M.T. Krishna Babu, IAS, Special Chief Secretary of Health, Medical & Family Welfare, Government of Andhra Pradesh, emphasized the need to strengthen rare disease care in the state.

Strengthening Rare Disease Care in Andhra Pradesh: Sri M.T. Krishna Babu, IAS

By IORD | 0 comment
This is a transcribed speech of Sri M.T. Krishna Babu, IAS, Special Chief Secretary, Health Medical & Family Welfare, Govt. of Andhra Pradesh highlighting need for Strengthening Rare Disease Care
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This is a transcribed speech of Dr. Vinod K. Paul, Member of the National Institution for Transforming India (NITI) Aayog, on "Manufacturing Drugs for Selected Rare Diseases." He delivered this speech at the World Rare Disease Day 2025 conference, organized by the Indian Organisation for Rare Diseases in Vijayawada, Andhra Pradesh, on February 28, 2025.

Manufacturing Drugs for Selected Rare Diseases: Dr Vinod K Paul

By IORD | 0 comment
Manufacturing Drugs for Selected Rare Diseases: Dr Vinod K PaulThis is a transcribed speech of Dr. Vinod K. Paul, Member of the National Institution for Transforming India (NITI) Aayog, on "Manufactur
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Registration is now open for World Rare Disease Day-2025 Conference, organized by the Indian Organisation for Rare Diseases (IORD) at FORTUNE Murali Park, Vijayawada in Andhra Pradesh on 28 February, 2025

Registration is now open for IORD World Rare Disease Day-2025

By IORD | 0 comment
Registration is now open for World Rare Disease Day-2025 Conference, organized by the Indian Organisation for Rare Diseases (IORD) at FORTUNE Murali Park, Vijayawada in Andhra Pradesh on 28 February,
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IORD

Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

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Indian Organization For Rare Diseases
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Email: indiaord@gmail.com

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IORD – Indian Organization for Rare Diseases