+91-9666438880
indiaord@gmail.com
IORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare Diseases
  • Home
  • About Us
    • Management Committee
    • Advisory Board
    • Newsletters
    • Newsletter Subscription
  • Rare Diseases
  • Research
  • Services
  • Donate
  • Gallery
    • Photo Gallery
      • World Rare Disease Day – 2023
      • World Rare Disease Day 2020
    • Video Gallery
      • World Rare Disease Day – 2020
      • World Rare Disease Day – 2019
      • World Rare Disease Day – 2018
  • Blog
  • Contact Us

DMD is no deterrent for 15-yr-old Chess player K S S R A Praneeth!

    Home Rare Disease News DMD is no deterrent for 15-yr-old Chess player K S S R A Praneeth!
    NextPrevious
    Battling from Rare Disease Duchenne Muscular Dystrophy, 15-yr-old KSSRA Praneeth has made a mark in Chess

    DMD is no deterrent for 15-yr-old Chess player K S S R A Praneeth!

    By IORD | Rare Disease News | 0 comment | 30 March, 2022 | 0

    Despite being born with the rare genetic disorder Duchenne Muscular Dystrophy (DMD), 15-year-old K S S R A Praneeth managed to carve a niche for himself in chess for the disabled.

    He is a former junior national chess champion for the disabled and has been awarded a special prize for his ‘skills’ in the Brilliant Trophy Open online chess tournament where he finished third in the under-15 age category, writes Telangana Today.

    While quoting his father K Srinivas Rao, Telangana Today writes, “Unfortunately, both my sons (Praneeth and his brother Sourie) suffer from the genetic disorder. But, they are very passionate about chess”.

    Online Open Competition

    The impact of Covid-19 had its impact as K S S R A Praneeth was forced to cut down on offline chess tournaments and focus more on online open chess competitions for the disabled.

    Praneeth started taking chess seriously when he was 9 years old and has been training under Amit Singh at Maestro Chess Academy. His biggest achievement came in 2017 when he was crowned national champion at Trichy in Tamil Nadu. He held the number 1 spot in the junior category for some time.

    Missing International Tournament

    Being a DMD patient that requires treatment for his weakening muscles that keeps on degenerating due to the impact of the rare disease, Praneeth was eager to take part in an international offline competition in Israel organised by the International Association of Chess with Physical Disability (IPCA).

    DMD, Duchenne Muscular Dystrophy, K S S R A Praneeth, rare disease awareness, Rare Disease Survivor, Rare Diseases

    IORD

    More posts by IORD

    Related Post

    • Inaugural session of World Rare Disease Day 2026 conference in Hyderabad, with experts from IORD, LVPEI, and Rainbow Children’s Hospital

      India: Rare Ophthalmic Disorders Take Centrestage at World Rare Disease Day-2026

      By IORD | 0 comment

      The event, attended by leading ophthalmologists, ocular geneticists, pediatric specialists, researchers, and patient advocates, spotlighted the urgent need for early diagnosis, stronger referral pathways, and expanded genetic and multidisciplinary services to address the growing burdenRead more

    • On World Rare Disease Day 2026, IORD, along with LV Prasad Eye Institute and Rainbow Children’s Hospital, is hosting a scientific conference in Hyderabad focused on Rare Ophthalmic Disorders

      IORD to Host World Rare Disease Day 2026 Conference Focused on Rare Ophthalmic Conditions

      By IORD | 0 comment

      Registration is now open. Limited seats available — register now using this link. Hyderabad, February 2026: The Indian Organisation for Rare Diseases (IORD), in collaboration with L V Prasad Eye Institute (LVPEI) and Rainbow Children’s Hospital,Read more

    • In this letter, IORD urges the Government of India to ensure affordable access to orphan drugs for rare disease patients through a public-interest, Section 8 non-profit pharmaceutical model supported by CSR funding.

      Bridging India’s Rare Disease Treatment Gap Through Public-Interest Pharmaceuticals

      By IORD | 0 comment

      IORD proposes a Section 8, CSR-supported public-interest pharmaceutical model to ensure affordable access to orphan drugs for millions of Indian patients.

    • IORD leaders urge inclusive, global collaboration to turn the WHA Rare Disease Resolution into real action at the RDI Asia-Pacific Webinar on October 9.

      From Hope to Action: IORD Calls for Inclusive Global Action on Rare Diseases

      By IORD | 0 comment

      The RDI Regional Webinar on “From the WHA Resolution to Action: Next Steps for Asia Pacific” marked a pivotal moment for regional cooperation on rare diseases.   “Hope” — that was the word chosen byRead more

    • Delhi High Court clears Natco to launch Risdiplam generic version Natsmart, making SMA treatment affordable for thousands of Indian families.

      Natco Wins Patent Battle, Makes SMA Drug Affordable in India

      By IORD | 0 comment

      Delhi High Court clears Natco to launch Risdiplam generic version Natsmart, making SMA treatment affordable for thousands.

    NextPrevious

    Categories

    • ABN Andhra Jyothi
    • ANI
    • Deccan Chronicle
    • Economic Times
    • Eenadu
    • Events
    • IORD in News
    • IORD Updates
    • News
    • Pharmabiz.com
    • Prime9 News
    • Rare Disease News
    • Rare Disease Survivor
    • Sakshi
    • Telangana Today
    • The Hans India
    • The Hindu
    • The Pioneer
    • Times Now
    • Times of India
    • Uncategorised
    • Vaartha

    Recent Posts

    • India: Rare Ophthalmic Disorders Take Centrestage at World Rare Disease Day-2026
    • IORD to Host World Rare Disease Day 2026 Conference Focused on Rare Ophthalmic Conditions
    • Bridging India’s Rare Disease Treatment Gap Through Public-Interest Pharmaceuticals
    • India Steps Forward as a Global Leader in Rare Disease Management
    • From Hope to Action: IORD Calls for Inclusive Global Action on Rare Diseases

    Archives

    • March 2026
    • February 2026
    • January 2026
    • November 2025
    • October 2025
    • September 2025
    • August 2025
    • July 2025
    • June 2025
    • May 2025
    • April 2025
    • March 2025
    • February 2025
    • January 2025
    • December 2024
    • November 2024
    • September 2024
    • July 2024
    • June 2024
    • May 2024
    • March 2024
    • February 2024
    • December 2023
    • October 2023
    • July 2023
    • June 2023
    • May 2023
    • April 2023
    • March 2023
    • February 2023
    • January 2023
    • December 2022
    • November 2022
    • October 2022
    • September 2022
    • August 2022
    • June 2022
    • May 2022
    • April 2022
    • March 2022
    • February 2022
    • January 2022
    • December 2021
    • November 2021
    • October 2021
    • September 2021
    • August 2021
    • July 2021
    • May 2021
    • April 2021
    • November 2020
    • March 2020
    • February 2020
    • January 2020
    • February 2019
    • January 2018
    • September 2015

    IORD

    Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

    RARE DISEASES

    • Rare Blood Diseases
    • Rare Heart Diseases
    • Rare Fungal Diseases
    • Rare Kidney Diseases
    • Rare Newborn Diseases
    • more...

    SERVICES

    • Research
    • Let's Come Together
    • Partner With Us
    • Volunteers
    • Privacy Policy
    • Sitemap

    CONTACT US

    Indian Organization For Rare Diseases
    Registered Office (India):
    Plot No. 397, Road No. 22B, Jubilee Hills, Hyderabad – 500033, Telangana, India.

    Phone: +91-9666438880

    Email: indiaord@gmail.com

    © 2020 Indian Organization For Rare Diseases | All Rights Reserved. Powered By Digital Dynamics
    • Home
    • About Us
      • Management Committee
      • Advisory Board
      • Newsletters
      • Newsletter Subscription
    • Rare Diseases
    • Research
    • Services
    • Donate
    • Gallery
      • Photo Gallery
        • World Rare Disease Day – 2023
        • World Rare Disease Day 2020
      • Video Gallery
        • World Rare Disease Day – 2020
        • World Rare Disease Day – 2019
        • World Rare Disease Day – 2018
    • Blog
    • Contact Us
    IORD – Indian Organization for Rare Diseases