IORD submits supplementary rare disease patient-safety indicators to NITI Aayog to strengthen quality, continuity and safety of care.
IORD submits supplementary rare disease patient-safety indicators to NITI Aayog to strengthen quality, continuity and safety of care.
Prof. Ramaiah Muthyala presents IORD’s blueprint for a Rare Disease Centre of Excellence in Andhra Pradesh at WZPEDICON-GUJNEOCON Conference 2026.
Andhra Pradesh launches stakeholder discussions on a state policy for rare diseases, bringing together government, experts and patient groups.
Sri M.T. Krishna Babu, IAS, Special Chief Secretary, AP, calls to strengthen rare disease care in Andhra Pradesh, emphasizing policy support, healthcare infrastructure, and improved access to diagnosis and treatment.
Indian Organization For Rare Diseases
Registered Office (India):
Plot No. 397, Road No. 22B, Jubilee Hills, Hyderabad – 500033, Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com