In this story, IORD highlights a family’s battle with Adrenoleukodystrophy, underscoring delayed diagnosis, rapid disease progression, and the urgent need for early intervention and accessible treatment options.
Blog
Home Search results for "Bone Marrow Transplant cost India"
Categories
Recent Posts
- Dr. Anil Kumar Mandal: 40-Year Journey Advancing Care in Congenital Glaucoma
- World Rare Disease Day 2026: Dr. Ramaiah Muthyala Focuses on Rare Ophthalmic Disorders
- India: Rare Ophthalmic Disorders Take Centrestage at World Rare Disease Day-2026
- IORD to Host World Rare Disease Day 2026 Conference Focused on Rare Ophthalmic Conditions
- Bridging India’s Rare Disease Treatment Gap Through Public-Interest Pharmaceuticals
Archives
- April 2026
- March 2026
- February 2026
- January 2026
- November 2025
- October 2025
- September 2025
- August 2025
- July 2025
- June 2025
- May 2025
- April 2025
- March 2025
- February 2025
- January 2025
- December 2024
- November 2024
- September 2024
- July 2024
- June 2024
- May 2024
- March 2024
- February 2024
- December 2023
- October 2023
- July 2023
- June 2023
- May 2023
- April 2023
- March 2023
- February 2023
- January 2023
- December 2022
- November 2022
- October 2022
- September 2022
- August 2022
- June 2022
- May 2022
- April 2022
- March 2022
- February 2022
- January 2022
- December 2021
- November 2021
- October 2021
- September 2021
- August 2021
- July 2021
- May 2021
- April 2021
- November 2020
- March 2020
- February 2020
- January 2020
- February 2019
- January 2018
- September 2015
IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
Registered Office (India):
Plot No. 397, Road No. 22B, Jubilee Hills, Hyderabad – 500033, Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com