IORD welcomes the landmark judgment by the Delhi High Court clearing Natco Pharma to launch its generic Risdiplam (Natsmart) for Spinal Muscular Atrophy.In a landmark judgment, the appellate Delhi Hi
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In this brief memoir, IORD Secretary Dr. Krishnaji Rao reflects on his personal journey into rare diseases, guided by hope and driven by advocacy.There are moments in life when destiny does not shout,
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This is a translated excerpt from Prime9 News panel discussion on rare diseases, featuring experts Dr. Amaresh Rao, Dr. Krishnaji Rao Muthyala, and Professor Ramaiah Muthyala. The discussion explored
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This is an abridged excerpt from an interview with Dr. Ramaiah Muthyala, Founder and CEO of the Indian Organization for Rare Diseases (IORD), given to senior journalist Kezia of ABN Andhra Jyothi news
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Khammam: Dr. Ramaiah Muthyala, President of the Indian Organization for Rare Diseases (IORD), addressed the Khammam Bar Association at an awareness program on “Rare Diseases – Role of Legal Profession
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This potential collaboration represents a major milestone for rare disease advocacy in India and could create new benchmarks for state-level policy action, medical workforce training, and public aware
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