Grid Right Sidebar

Inaugural session of World Rare Disease Day 2026 conference in Hyderabad, with experts from IORD, LVPEI, and Rainbow Children’s Hospital

India: Rare Ophthalmic Disorders Take Centrestage at World Rare Disease Day-2026

The event, attended by leading ophthalmologists, ocular geneticists, pediatric specialists, researchers, and patient advocates, spotlighted the urgent need for early diagnosis, stronger referral pathw
Read more

On World Rare Disease Day 2026, IORD, along with LV Prasad Eye Institute and Rainbow Children’s Hospital, is hosting a scientific conference in Hyderabad focused on Rare Ophthalmic Disorders

IORD to Host World Rare Disease Day 2026 Conference Focused on Rare Ophthalmic Conditions

By IORD | 0 comment

Registration is now open. Limited seats available — register now using this link.Hyderabad, February 2026: The Indian Organisation for Rare Diseases (IORD), in collaboration with L V Prasad Eye Instit
Read more

In this letter, IORD urges the Government of India to ensure affordable access to orphan drugs for rare disease patients through a public-interest, Section 8 non-profit pharmaceutical model supported by CSR funding.

Bridging India’s Rare Disease Treatment Gap Through Public-Interest Pharmaceuticals

By IORD | 0 comment

Reproduced below is the letter addressed by IORD President and CEO Prof. Ramaiah Muthyala to the Government of India, advocating affordable access to orphan drugs for rare disease patients through a p
Read more

In this insightful article published in PharmaClick, Dr. Krishnaji Rao, Secretary of IORD, explains how India is accelerating progress in rare disease policy, early diagnosis, research innovation, and patient support.

India Steps Forward as a Global Leader in Rare Disease Management

By IORD | 0 comment

(This article is written by Dr. Krishnaji Rao, IORD Secretary, and first appeared in Pharmaclick magazine on pages 67, 68, and 69. The original article can be accessed here)The Indian Organisation for
Read more

IORD leaders urge inclusive, global collaboration to turn the WHA Rare Disease Resolution into real action at the RDI Asia-Pacific Webinar on October 9.

From Hope to Action: IORD Calls for Inclusive Global Action on Rare Diseases

By IORD | 0 comment

The RDI Regional Webinar on “From the WHA Resolution to Action: Next Steps for Asia Pacific” marked a pivotal moment for regional cooperation on rare diseases. “Hope” — that was the word chosen
Read more

Michael Grivas, a Brugada Syndrome survivor from Greece, whose experience inspired the Hippocrates AI Assistant, shares his inspiring story.

Michael Grivas: My Personal Story with Brugada Syndrome

By IORD | 0 comment

Diagnosed with Brugada Syndrome at 27, Michael Grivas from Greece turned his personal health struggle into a mission to help others. His experience inspired the creation of the Hippocrates AI Assistan
Read more

Grid Right Sidebar

India: Rare Ophthalmic Disorders Take Centrestage at World Rare Disease Day-2026

IORD to Host World Rare Disease Day 2026 Conference Focused on Rare Ophthalmic Conditions

Bridging India’s Rare Disease Treatment Gap Through Public-Interest Pharmaceuticals

India Steps Forward as a Global Leader in Rare Disease Management

From Hope to Action: IORD Calls for Inclusive Global Action on Rare Diseases

Michael Grivas: My Personal Story with Brugada Syndrome

Categories

Recent Posts

Archives

IORD

RARE DISEASES

SERVICES

CONTACT US