Kakatiya Medical College students presents research at Armed Forces Medical College, exposing diagnostic delays, systemic gaps, and patient struggles in India’s rare disease care.
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IORD CEO and President Prof. Ramaiah Muthyala calls for policy reforms at the World Orphan Drug Congress 2025, addressing access barriers, costs, and solutions for rare disease care.
India waives port testing for orphan drugs, as announced by Central Drugs Standard Control Organisation, accelerating imports and improving timely access to life-saving treatments for rare disease patients.
In a first, Osmania General Hospital doctors perform a life-saving liver transplant on a teen with Marfan Syndrome and severe Hepatopulmonary Syndrome.
IORD CEO and President Prof. Ramaiah Muthyala delivered keynote at the RJS PBH webinar on World Health Day 2025, emphasizing global action, early care, and hope for rare disease patients.