IORD presents May 2025 rare disease breakthroughs, showcasing advances in AI-based diagnostics, CRISPR therapies, and genetic testing, signaling improved detection, treatment, and global progress in care.
IORD presents May 2025 rare disease breakthroughs, showcasing advances in AI-based diagnostics, CRISPR therapies, and genetic testing, signaling improved detection, treatment, and global progress in care.
The World Health Assembly adopted a historic rare diseases resolution, with India among co-sponsors, approving a 10-year global plan for equitable care, policy action, and inclusion.
IORD highlights India’s rare disease crisis, with Prof. Ramaiah Muthyala urging grassroots solutions to improve access, awareness, and care for millions affected nationwide.
IORD CEO & President Dr. Ramaiah Muthyala provides insights on advancing rare disease awareness in India, stressing early diagnosis, frontline healthcare training, and integration into public health systems.
IORD highlights gaps in rare disease care, with Prof. Ramaiah Muthyala noting progress under NPRD but stressing persistent challenges in diagnosis, treatment, and need for disease-specific strategies.
Indian Organization For Rare Diseases
Registered Office (India):
Plot No. 397, Road No. 22B, Jubilee Hills, Hyderabad – 500033, Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com