IORD highlights gaps in rare disease care, with Prof. Ramaiah Muthyala noting progress under NPRD but stressing persistent challenges in diagnosis, treatment, and need for disease-specific strategies.
Blog
Kakatiya Medical College students presents research at Armed Forces Medical College, exposing diagnostic delays, systemic gaps, and patient struggles in India’s rare disease care.
IORD CEO and President Prof. Ramaiah Muthyala calls for policy reforms at the World Orphan Drug Congress 2025, addressing access barriers, costs, and solutions for rare disease care.
India waives port testing for orphan drugs, as announced by Central Drugs Standard Control Organisation, accelerating imports and improving timely access to life-saving treatments for rare disease patients.
In a first, Osmania General Hospital doctors perform a life-saving liver transplant on a teen with Marfan Syndrome and severe Hepatopulmonary Syndrome.
IORD CEO and President Prof. Ramaiah Muthyala delivered keynote at the RJS PBH webinar on World Health Day 2025, emphasizing global action, early care, and hope for rare disease patients.
IORD marks World Rare Disease Day 2025 with a conference in Vijayawada, advocating policy action, improved diagnosis, treatment access, and greater awareness through expert and stakeholder participation.
IORD CEO & President Prof. Ramaiah Muthyala calls for policy reforms in Andhra Pradesh, emphasizing improved rare disease healthcare, early diagnosis, and stronger government support for affected patients.
IORD CEO & President Prof Ramaiah Muthyala presents a case study on Autosomal Recessive Congenital Ichthyosis at the Undiagnosed Disease Network Conference, highlighting collaborative genomics and patient support in rare disease care.
Sri M.T. Krishna Babu, IAS, Special Chief Secretary, AP, calls to strengthen rare disease care in Andhra Pradesh, emphasizing policy support, healthcare infrastructure, and improved access to diagnosis and treatment.