+91-9666438880
indiaord@gmail.com
IORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare Diseases
  • Home
  • About Us
    • Management Committee
    • Advisory Board
    • Newsletters
    • Newsletter Subscription
  • Rare Diseases
  • Research
  • Services
  • Donate
  • Gallery
    • Photo Gallery
      • World Rare Disease Day – 2023
      • World Rare Disease Day 2020
    • Video Gallery
      • World Rare Disease Day – 2020
      • World Rare Disease Day – 2019
      • World Rare Disease Day – 2018
  • Blog
  • Contact Us

ICORD to Host its 16th Annual Meeting in Argentina on July 24-25

    Home IORD in News ICORD to Host its 16th Annual Meeting in Argentina on July 24-25
    NextPrevious
    Registration is now open for the 16th ICORD Annual Meeting in Argentina. Interested rare disease stakeholders, including professionals and researchers from around the world, are invited to join the 16th Annual ICORD meeting for meaningful discourse and valuable insights.

    ICORD to Host its 16th Annual Meeting in Argentina on July 24-25

    By IORD | IORD in News, IORD Updates, News, Rare Disease News | 0 comment | 15 June, 2024 | 0

    The Indian Organisation for Rare Diseases is an institutional partner of ICORD.

    Buenos Aires: The 16th ICORD Annual Meeting, themed “Incentivizing Science and a Comprehensive Program for Rare Diseases,” is set to convene at the esteemed “Aula Magna” in the Faculty of Pharmacy and Biochemistry at the University of Buenos Aires (UBA), located at Junín 956, Autonomous City of Buenos Aires, Argentina. Scheduled for July 24 and 25, 2024, this event promises to be a pivotal gathering for stakeholders in the field of rare diseases.

    Hosted by the International Collaboration for Rare Diseases and Orphan Drugs (ICORD), the Faculty of Pharmacy and Biochemistry at the University of Buenos Aires and Colaboración para las Enfermedades Raras y Drogas Huérfanas (CERyDH, the delegate for ICORD Congress in Argentina), the meeting boasts an impressive lineup of institutional partners.

    They include the International Rare Diseases Research Consortium (IRDiRC), the Red Iberoamericana de Enfermedades Raras (RIBERSER), the Indian Organization for Rare Diseases (IORD), the Chinese Organization for Rare Diseases (CORD), Centro de Referencia en Enfermedades Raras y de Dificultoso Diagnóstico (CERYD), Enfermedades Raras Latinoamérica (Latiner SA) and Fiebre Mediterránea Familiar, Argentina (FMF).

    Objectives of the Meeting:

    1. To advocate for the establishment of comprehensive health programs tailored to address rare diseases, alongside the development of orphan drugs. These programs will draw inspiration from international models, ensuring adaptability to Latin American contexts. Emphasis will be placed on prioritization aligned with local health landscapes and the socio-economic conditions of respective nations.
    2. To propose operational frameworks and incentives aimed at fostering collaboration among local scientists and the healthcare industry. The goal is to facilitate the discovery and production of orphan diagnoses and treatments, in partnership with global counterparts, while upholding the highest standards of excellence.

    With these ambitious aims and an esteemed lineup of partners, the 16th ICORD Annual Meeting promises to be a significant milestone in advancing the cause of rare diseases worldwide.

     

    Online Registration Details:

    Online Registration is now open for 16th ICORD Annual Meeting. Interested rare disease stakeholders, including professionals and researchers from around the world, are invited to register for the 16th Annual ICORD meeting for meaningful discourse and valuable insights through this link.

    The conference registration fee is €50 (fifty euros). However, fee waivers are available for eligible individuals:

    • Faculty members and/or researchers affiliated with UBA and/or UBA-CONICET.
    • Patients and members of patient associations for rare diseases.
    • First authors of presented abstracts.

    Eligible members can request a fee waiver by submitting a note explaining their eligibility via this form. Requests will be reviewed by the organizing team.

    Registration Link: https://forms.gle/7vJMW2XLGrDPNNrf8

     

     

    16th Annual ICORD meeting, Chinese Organization for Rare Diseases, Dr Ramaiah Muthyala, Fiebre Mediterránea Familiar, Indian Organisation For Rare Diseases, International Collaboration for Rare Diseases and Orphan Drugs, prof Muthyala Ramaiah, rare disease awareness, Rare disease research consortium

    IORD

    More posts by IORD

    Related Post

    • WHO Grants ‘Official Relations’ Status to Rare Diseases International. It Will Help Enhance Collaboration With WHO to Enhance Healthcare Access for Rare Disease Community

      Rare Diseases International Gains WHO Recognition, Granted “Official Relations” Status

      By IORD | 0 comment

      Indian Organization for Rare Diseases (IORD) is a full member of Rare Disease International (RDI) Geneva: In a notable achievement for the global rare disease fraternity, Rare Diseases International (RDI) has been granted “official relations”Read more

    • INTERVIEW: Prof Ramaiah Muthyala, President & CEO of Indian Organization for Rare Diseases (IORD), discusses with Pharma Intelligence about central government's exemption of customs duty for importing drugs and food items for treating rare diseases

      Interview: IORD CEO Prof Ramaiah Muthyala on Customs Exemptions for Rare Disease Drugs

      By IORD | 0 comment

      The following is an excerpt from an interview conducted by Pharma Intelligence with Prof Ramaiah Muthyala, President & CEO of Indian Organization for Rare Diseases (IORD), on central government’s exemption of customs duty on importedRead more

    • Customs Duty Waived on Import of Rare Disease Drugs & Special Food

      IORD Advocacy: Customs Duty Waived on Import of Rare Disease Drugs & Special Food

      By IORD | 0 comment

      The government has waived basic customs duty on drugs and food items prescribed for special medical purposes that are imported for the treatment of rare diseases listed under National Policy for Rare Diseases, 2021.

    • Indian Organization for Rare Diseases (IORD), a not-for-profit national advocacy organization, working for the cause of patients with rare diseases, spanning over the last fifteen years, hosted the awareness Bikeathon and Walkathon, to commemorate the World Rare Disease Day-2023, in association with the Government of Telangana.

      Cycle For Rare: IORD’s Bikeathon, Walkathon for Rare Disease Draws Huge Response

      By IORD | 0 comment

      The youngest Bikeathon participant was Korukonda lyosha, aged only eight years, while the oldest walkathon participant was Subhash Pande, aged 76 years at IORD’s Bikeathon │ Walkathon │ For Rare

    • World Rare Disease Day 2023

      Cycle For Rare

      By IORD | 0 comment

      Join us to be the voice of 300 million affected people worldwide on World Rare Disease Day-2023. The not-for-profit Indian Organization for Rare Diseases (IORD) is excited to invite you all to an awareness bikeathonRead more

    NextPrevious

    Categories

    • ABN Andhra Jyothi
    • ANI
    • Deccan Chronicle
    • Economic Times
    • Eenadu
    • Events
    • IORD in News
    • IORD Updates
    • News
    • Pharmabiz.com
    • Prime9 News
    • Rare Disease News
    • Rare Disease Survivor
    • Sakshi
    • Telangana Today
    • The Hans India
    • The Hindu
    • The Pioneer
    • Times Now
    • Times of India
    • Uncategorised
    • Vaartha

    Recent Posts

    • India: Rare Ophthalmic Disorders Take Centrestage at World Rare Disease Day-2026
    • IORD to Host World Rare Disease Day 2026 Conference Focused on Rare Ophthalmic Conditions
    • Bridging India’s Rare Disease Treatment Gap Through Public-Interest Pharmaceuticals
    • India Steps Forward as a Global Leader in Rare Disease Management
    • From Hope to Action: IORD Calls for Inclusive Global Action on Rare Diseases

    Archives

    • March 2026
    • February 2026
    • January 2026
    • November 2025
    • October 2025
    • September 2025
    • August 2025
    • July 2025
    • June 2025
    • May 2025
    • April 2025
    • March 2025
    • February 2025
    • January 2025
    • December 2024
    • November 2024
    • September 2024
    • July 2024
    • June 2024
    • May 2024
    • March 2024
    • February 2024
    • December 2023
    • October 2023
    • July 2023
    • June 2023
    • May 2023
    • April 2023
    • March 2023
    • February 2023
    • January 2023
    • December 2022
    • November 2022
    • October 2022
    • September 2022
    • August 2022
    • June 2022
    • May 2022
    • April 2022
    • March 2022
    • February 2022
    • January 2022
    • December 2021
    • November 2021
    • October 2021
    • September 2021
    • August 2021
    • July 2021
    • May 2021
    • April 2021
    • November 2020
    • March 2020
    • February 2020
    • January 2020
    • February 2019
    • January 2018
    • September 2015

    IORD

    Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

    RARE DISEASES

    • Rare Blood Diseases
    • Rare Heart Diseases
    • Rare Fungal Diseases
    • Rare Kidney Diseases
    • Rare Newborn Diseases
    • more...

    SERVICES

    • Research
    • Let's Come Together
    • Partner With Us
    • Volunteers
    • Privacy Policy
    • Sitemap

    CONTACT US

    Indian Organization For Rare Diseases
    Registered Office (India):
    Plot No. 397, Road No. 22B, Jubilee Hills, Hyderabad – 500033, Telangana, India.

    Phone: +91-9666438880

    Email: indiaord@gmail.com

    © 2020 Indian Organization For Rare Diseases | All Rights Reserved. Powered By Digital Dynamics
    • Home
    • About Us
      • Management Committee
      • Advisory Board
      • Newsletters
      • Newsletter Subscription
    • Rare Diseases
    • Research
    • Services
    • Donate
    • Gallery
      • Photo Gallery
        • World Rare Disease Day – 2023
        • World Rare Disease Day 2020
      • Video Gallery
        • World Rare Disease Day – 2020
        • World Rare Disease Day – 2019
        • World Rare Disease Day – 2018
    • Blog
    • Contact Us
    IORD – Indian Organization for Rare Diseases