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Home Search results for "World Orphan Drug Congress"
Prof. Ramaiah Muthyala (left, sitting) discussing innovative solutions for rare diseases at the 2025 World Orphan Drug Congress in Boston. With a focus on policy reforms and access to affordable medications, the panel addressed the urgent need for systemic change in rare disease care globally

Prof. Ramaiah Muthyala Calls for Policy Reforms at World Orphan Drug Congress-2025

By IORD | Events, IORD Updates, Rare Disease News | 0 comment | 4 May, 2025 | 0

IORD CEO and President Prof. Ramaiah Muthyala calls for policy reforms at the World Orphan Drug Congress 2025, addressing access barriers, costs, and solutions for rare disease care.

While India’s pharmaceutical industry is predicted to reach $100 billion by 2025, access to rare disease drugs is still a major problem in India, where local and imported orphan medicine prices fluctuate significantly with huge cost differences.

Made in India, Missing in India: The Orphan Drug Access Challenge

By IORD | Events, IORD in News, IORD Updates, Rare Disease News | 0 comment | 18 May, 2024 | 3

At the World Orphan Drug Congress 2024, Indian Organization for Rare Diseases President Ramaiah Muthyala said India produces APIs for all orphan drugs yet access remains limited and costly.

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