IORD CEO and President Prof. Ramaiah Muthyala calls for policy reforms at the World Orphan Drug Congress 2025, addressing access barriers, costs, and solutions for rare disease care.
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Read IORD CEO & President Prof. Ramaiah Muthyala’s webinar address at Federation of Asian Biotech Associations webinar on global rare disease burden, challenges, and need for coordinated action.
A webinar organized by the Federation of Asian Biotech Associations-US chapter highlighted the socio-economic and emotional impact on the 70 million Indians affected by rare diseases (RDs).
Rare diseases, though affecting a small percentage of the population, represent a significant public health challenge in India. The Indian Organisation for Rare Diseases (IORD) has been at the forefront of advocating for policies, raising awareness, and improving treatment access. Rare diseases not only lead to the loss of human productivity but also place aRead more