IORD highlights gaps in rare disease care, with Prof. Ramaiah Muthyala noting progress under NPRD but stressing persistent challenges in diagnosis, treatment, and need for disease-specific strategies.
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- Dr. Anil Kumar Mandal: 40-Year Journey Advancing Care in Congenital Glaucoma
- World Rare Disease Day 2026: Dr. Ramaiah Muthyala Focuses on Rare Ophthalmic Disorders
- India: Rare Ophthalmic Disorders Take Centrestage at World Rare Disease Day-2026
- IORD to Host World Rare Disease Day 2026 Conference Focused on Rare Ophthalmic Conditions
- Bridging India’s Rare Disease Treatment Gap Through Public-Interest Pharmaceuticals
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
Registered Office (India):
Plot No. 397, Road No. 22B, Jubilee Hills, Hyderabad – 500033, Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com