IORD presents May 2025 rare disease breakthroughs, showcasing advances in AI-based diagnostics, CRISPR therapies, and genetic testing, signaling improved detection, treatment, and global progress in care.
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IORD marks World Rare Disease Day 2025 with a conference in Vijayawada, advocating policy action, improved diagnosis, treatment access, and greater awareness through expert and stakeholder participation.
IORD CEO & President Prof. Ramaiah Muthyala calls for policy reforms in Andhra Pradesh, emphasizing improved rare disease healthcare, early diagnosis, and stronger government support for affected patients.
IORD CEO & President Prof Ramaiah Muthyala presents a case study on Autosomal Recessive Congenital Ichthyosis at the Undiagnosed Disease Network Conference, highlighting collaborative genomics and patient support in rare disease care.
Dr. Vinod K. Paul, Member, NITI Aayog, calls for manufacturing drugs for selected rare diseases, emphasizing affordability, domestic production, and improved patient access.
The following is an excerpt from an interview conducted by Pharma Intelligence with Prof Ramaiah Muthyala, President & CEO of Indian Organization for Rare Diseases (IORD), on central government’s exemption of customs duty on imported drugs and food items recommended for special medical purposes to treat rare diseases. You can read the complete story writtenRead more
The government has waived basic customs duty on drugs and food items prescribed for special medical purposes that are imported for the treatment of rare diseases listed under National Policy for Rare Diseases, 2021.
Prof. Ramaiah Muthyala delivering a talk on rare diseases in India, in Visakhapatnam on Monday. — PHOTO: C.V. SUBRAHMANYAM This is the era of genetics and not IT anymore, asserted a professor from University of Minnesota of the US who is working in the direction of forming support groups to find drugs for rare diseasesRead more