IORD marks World Rare Disease Day 2025 with a conference in Vijayawada, advocating policy action, improved diagnosis, treatment access, and greater awareness through expert and stakeholder participation.
IORD marks World Rare Disease Day 2025 with a conference in Vijayawada, advocating policy action, improved diagnosis, treatment access, and greater awareness through expert and stakeholder participation.
IORD CEO & President Prof Ramaiah Muthyala presents a case study on Autosomal Recessive Congenital Ichthyosis at the Undiagnosed Disease Network Conference, highlighting collaborative genomics and patient support in rare disease care.
Indian Organization For Rare Diseases
Registered Office (India):
Plot No. 397, Road No. 22B, Jubilee Hills, Hyderabad – 500033, Telangana, India.
Phone: +91-9666438880
Email: indiaord@gmail.com