The following is an excerptfrom an interviewconducted by Pharma Intelligence with Prof Ramaiah Muthyala, President &CEO of Indian Organization for Rare Diseases (IORD), on centralgovernment's exem
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The following is an excerpt from an interview of Dr Ramaiah Muthyala, President and CEO, Indian Organisation for Rare Diseases published by BioSpectrum in its April 2023 edition. It an English languag
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Thanks tothe concerted efforts of national advocacy Indian Organization for RareDiseases (IORD) towards the needs of rare disease patients and the community atlarge, the union finance ministry has now
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It was a pleasant morning and the sun was barely up on the Sunday ofFebruary 26th when cyclists from all over the city gathered at the startingline of the bikeathon for rare disease awareness at Neckl
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Join us to be the voice of 300 million affected people worldwide on World Rare Disease Day-2023. The not-for-profit Indian Organization for Rare Diseases (IORD) is excited to invite you all to an awar
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In a first of its kind comprehensive plan for management of any rare disease in India, the Union Finance minister Nirmala Sitharaman in her Budget 2023 presentation announced that the government would
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