+91-9666438880
indiaord@gmail.com
IORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare Diseases
  • Home
  • About Us
    • Management Committee
    • Advisory Board
    • Newsletters
    • Newsletter Subscription
  • Rare Diseases
  • Research
  • Services
  • Donate
  • Gallery
    • Photo Gallery
      • World Rare Disease Day – 2023
      • World Rare Disease Day 2020
    • Video Gallery
      • World Rare Disease Day – 2020
      • World Rare Disease Day – 2019
      • World Rare Disease Day – 2018
  • Blog
  • Contact Us

Grid Left Sidebar

  • Classic Blog Right Sidebar
  • Grid Right Sidebar
  • Grid Left Sidebar
  • Masonry 3 columns
  • Masonry 2 columns
  • Masonry 4 Columns
  • Grid 2 Columns
  • Grid 3 Columns
  • Grid 4 Columns
  • Masonry Left Sidebar
  • Masonry Right Sidebar
  • Multi Author Right Sidebar
  • Multi Author Left Sidebar
  • Multi Author Layout
  • Masonry Full Width
  • Grid Full Width
Home Blog Grid Left SidebarPage 4
Prof. Ramaiah Muthyala, CEO & President of IORD, inaugurates the World Rare Disease Day 2025 conference in Vijayawada by lighting the ceremonial lamp in the presence of dignitaries.

World Rare Disease Day 2025: IORD Advocates for Policy & Awareness

By IORD | 0 comment
Vijayawada: The Indian Organization for Rare Diseases (IORD), a non-profit advocacy body, convened a critical conference titled “RAISE THE AWARENESS - RARE DISEASES: Advocate Public Policy, Promote Di
Read more
This is a transcribed speech of Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala delivered at the World Rare Disease Day 2025 conference in Vijayawada, organized by the IORD.

Prof Ramaiah Muthyala: A Call for Policy Change and Rare Disease Healthcare in Andhra Pradesh

By IORD | 0 comment
This is a transcribed speech of Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala delivered at the World Rare Disease Day 2025 conference in Vijayawada, organized
Read more
This extract is from a poster presented by Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala, titled: “Role of Patient Support Organizations and Collaborative Genomics Programs in Enabling Participatory Medicine for Rare Diseases in India: A Case Study of Autosomal Recessive Congenital Ichthyosis” at the Undiagnosed Disease Network Conference, South Korea (Sept 4–6, 2024).

Undiagnosed Disease Network Conference – Congenital Ichthyosis Case Study from India

By IORD | 0 comment
This extract is from a poster presented by Indian Organisation for Rare Diseases (IORD) President and CEO, Prof. Ramaiah Muthyala, titled: “Role of Patient Support Organizations and Collaborative Geno
Read more
At the World Rare Disease Day 2025 conference in Vijayawada organised by Indian Organisation for Rare Diseases, Sri M.T. Krishna Babu, IAS, Special Chief Secretary of Health, Medical & Family Welfare, Government of Andhra Pradesh, emphasized the need to strengthen rare disease care in the state.

Strengthening Rare Disease Care in Andhra Pradesh: Sri M.T. Krishna Babu, IAS

By IORD | 0 comment
This is a transcribed speech of Sri M.T. Krishna Babu, IAS, Special Chief Secretary, Health Medical & Family Welfare, Govt. of Andhra Pradesh highlighting need for Strengthening Rare Disease Care
Read more
This is a transcribed speech of Dr. Vinod K. Paul, Member of the National Institution for Transforming India (NITI) Aayog, on "Manufacturing Drugs for Selected Rare Diseases." He delivered this speech at the World Rare Disease Day 2025 conference, organized by the Indian Organisation for Rare Diseases in Vijayawada, Andhra Pradesh, on February 28, 2025.

Manufacturing Drugs for Selected Rare Diseases: Dr Vinod K Paul

By IORD | 0 comment
Manufacturing Drugs for Selected Rare Diseases: Dr Vinod K PaulThis is a transcribed speech of Dr. Vinod K. Paul, Member of the National Institution for Transforming India (NITI) Aayog, on "Manufactur
Read more
Registration is now open for World Rare Disease Day-2025 Conference, organized by the Indian Organisation for Rare Diseases (IORD) at FORTUNE Murali Park, Vijayawada in Andhra Pradesh on 28 February, 2025

Registration is now open for IORD World Rare Disease Day-2025

By IORD | 0 comment
Registration is now open for World Rare Disease Day-2025 Conference, organized by the Indian Organisation for Rare Diseases (IORD) at FORTUNE Murali Park, Vijayawada in Andhra Pradesh on 28 February,
Read more
The Indian Organization for Rare Diseases (IORD) and the Ram-Janaki Institute Positive Broadcasting House (RJS PBH) have initiated a 20-day awareness campaign to highlight the challenges faced by individuals with rare diseases. The campaign, inaugurated by Professor (Dr.) Ramayya Muthyala, President and CEO of IORD, aims to raise awareness ahead of World Rare Disease Day on February 28, 2025.

IORD-RJS Launches 20-Day Rare Disease Awareness Campaign

By IORD | 0 comment
New Delhi: In the run up to the World Rare Disease Day 2025 on 28 February, a 20-day awareness campaign for rare diseases was launched by the Ram-Janki Institute Positive Broadcasting House (RJS PBH),
Read more
A webinar titled on the Urgent Need for a Unified Approach to Tackle Rare Diseases in India is being organized jointly by RJS PBH - RJS Positive Media and the Indian Organisation for Rare Diseases (IORD) on February 9 at 11.00 AM.

Join Expert-Led RJS PBH Webinar on Rare Diseases on 9th Feb

By IORD | 0 comment
A webinar titled on the "Urgent Need for a Unified Approach to Tackle Rare Diseases in India" is being organized jointly by RJS PBH - RJS Positive Media and the Indian Organisation for Rare Diseases (
Read more
The following article is reproduced from an editorial article by Kamal Pratap Singh published in Biotech Express on page 8 in November 2024 based on the webinar ‘The Global Burden of Rare Diseases: Issues and Challenges’ addressed by Prof. Ramaiah Muthyala at the Federation of Asian Biotech Associations (FABA)-US Chapter.

Prof Ramaiah Muthyala Updates on Rare Diseases in India

By IORD | 0 comment
The following is reproduced from an editorial article by Kamal Pratap Singh published in Biotech Express on page 8 in November 2024 based on the webinar ‘The Global Burden of Rare Diseases: Issues and
Read more
The Global Burden of Rare Diseases: Issues and Challenges' was addressed by Hyderabad-based Indian Organization for Rare Diseases founder Prof. Ramaiah Muthyala.

Affordability of drugs for rare diseases a challenge

By IORD | 0 comment
The following article is reproduced from a news article by Amrita Didyala, published in Times of India on Wednesday, December 18, 2024, based on the webinar ‘The Global Burden of Rare Diseases: Issues
Read more
23456

Categories

  • ABN Andhra Jyothi
  • ANI
  • Deccan Chronicle
  • Economic Times
  • Eenadu
  • Events
  • IORD in News
  • IORD Updates
  • News
  • Pharmabiz.com
  • Prime9 News
  • Rare Disease News
  • Rare Disease Survivor
  • Sakshi
  • Telangana Today
  • The Hans India
  • The Hindu
  • The Pioneer
  • Times Now
  • Times of India
  • Uncategorised
  • Vaartha
  • World Rare Disease Day 2026

Recent Posts

  • India Expands Rare Disease Centres of Excellence Network to 15 Under NPRD 2021
  • From Diagnosis to Care: Dr. Muralidhar Ramappa on Rare Eye Diseases
  • Global Albinism Alliance to Host Community Meeting in Delhi on May 4
  • IORD seeks seat on South East Asia rare disease task force panel
  • Dr. Anil Kumar Mandal: 40-Year Journey Advancing Care in Congenital Glaucoma

Archives

  • May 2026
  • April 2026
  • March 2026
  • February 2026
  • January 2026
  • November 2025
  • October 2025
  • September 2025
  • August 2025
  • July 2025
  • June 2025
  • May 2025
  • April 2025
  • March 2025
  • February 2025
  • January 2025
  • December 2024
  • November 2024
  • September 2024
  • July 2024
  • June 2024
  • May 2024
  • March 2024
  • February 2024
  • December 2023
  • October 2023
  • July 2023
  • June 2023
  • May 2023
  • April 2023
  • March 2023
  • February 2023
  • January 2023
  • December 2022
  • November 2022
  • October 2022
  • September 2022
  • August 2022
  • June 2022
  • May 2022
  • April 2022
  • March 2022
  • February 2022
  • January 2022
  • December 2021
  • November 2021
  • October 2021
  • September 2021
  • August 2021
  • July 2021
  • May 2021
  • April 2021
  • November 2020
  • March 2020
  • February 2020
  • January 2020
  • February 2019
  • January 2018
  • September 2015

IORD

Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

RARE DISEASES

  • Rare Blood Diseases
  • Rare Heart Diseases
  • Rare Fungal Diseases
  • Rare Kidney Diseases
  • Rare Newborn Diseases
  • more...

SERVICES

  • Research
  • Let's Come Together
  • Partner With Us
  • Volunteers
  • Privacy Policy
  • Sitemap

CONTACT US

Indian Organization For Rare Diseases
Registered Office (India):
Plot No. 397, Road No. 22B, Jubilee Hills, Hyderabad – 500033, Telangana, India.

Phone: +91-9666438880

Email: indiaord@gmail.com

© 2020 Indian Organization For Rare Diseases | All Rights Reserved. Powered By Digital Dynamics
  • Home
  • About Us
    • Management Committee
    • Advisory Board
    • Newsletters
    • Newsletter Subscription
  • Rare Diseases
  • Research
  • Services
  • Donate
  • Gallery
    • Photo Gallery
      • World Rare Disease Day – 2023
      • World Rare Disease Day 2020
    • Video Gallery
      • World Rare Disease Day – 2020
      • World Rare Disease Day – 2019
      • World Rare Disease Day – 2018
  • Blog
  • Contact Us
IORD – Indian Organization for Rare Diseases