At the World Orphan Drug Congress 2024, Indian Organization for Rare Diseases President Ramaiah Muthyala said India produces APIs for all orphan drugs yet access remains limited and costly.
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Rare Disease patient advocacy groups urged the Union Health Ministry to streamline rare disease funding after major underutilisation by Centres of Excellence.
The following is a translated excerpt from the speech made by IORD CEO & President Prof Ramaiah Muthyala at World Rare Disease Day-2024 conference organized by IORD at IMA Hall, Khammam on March 3.
The following is an excerpt from a news story on IORD’s World Rare Disease Day-2024 event published in Telangana Today newspaper.
In Khammam, Indian Organization for Rare Diseases hosted a World Rare Disease Day 2024 conference with Swarna Bharat Trust, bringing together patients, experts, and stakeholders.