A webinar titled on the “Urgent Need for a Unified Approach to Tackle Rare Diseases in India” is being organized jointly by RJS PBH – RJS Positive Media and the Indian Organisation for Rare Diseases (IORD) on February 9 at 11.00 AM. This event marks a significant step towards addressing the challenges posed by rare diseases in India and emphasizes the importance of a unified approach to combat them.
This webinar is part of series of programmes in the run up to the World Rare Disease Day-2025 on February 28 will focus on the critical need for a unified approach to tackle rare diseases in India. Experts from various fields including speakers from All India Institute of Medical Sciences (AIIMS), Delhi will discuss the challenges and potential solutions to improve healthcare for individuals living with rare diseases.
Keynote Speakers and Special Guests:
- Prof. (Dr.) Yamini Bhushan Tripathi
Former Dean, Faculty of Ayurveda, BHU, Banaras U.P.
CEO, M/s Yamini Innovations [LLP], MSME
Special Guest - Prof. (Dr.) Sheffali Gulati
Chief, Child Neurology Division, Department of Pediatrics, AIIMS, New Delhi
Chief Guest - Prof. (Dr.) Ramaiah Muthyala
Professor/Director at the University of Minnesota, USA
President and CEO, Indian Organization for Rare Diseases
Keynote Speaker - Prafull D. Sheth
Vice Chairman, Patient Safety and Access Initiative of India Foundation (PSAIIF)
Welcome Address
Join Us Online:
We invite you to join us for this webinar and contribute to the conversation on tackling rare diseases in India. Let’s come together to create a healthier, more supportive healthcare environment for all.
Zoom Meeting Link: Click here
Meeting ID: 871 0768 5863
Passcode: 758302
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Together, we can pave the way for a Positive Bharat and tackle the pressing challenges in healthcare.
About RJS PBH:
Founded in 2015, RJS PBH has been dedicated to spreading positivity and fostering positive change in India and globally through media dialogues, webinars, and podcasts. This year, RJS PBH is celebrating the 10th anniversary of their efforts to create a Positive Bharat aligned with India’s vision for growth, unity, and progress.
Website: www.rjspbh.com
Facebook: RJS PBH Facebook
Email: rjspositivemovement@gmail.com
