+91-9666438880
indiaord@gmail.com
IORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare Diseases
  • Home
  • About Us
    • Management Committee
    • Advisory Board
    • Newsletters
    • Newsletter Subscription
  • Rare Diseases
  • Research
  • Services
  • Donate
  • Gallery
    • Photo Gallery
      • World Rare Disease Day – 2023
      • World Rare Disease Day 2020
    • Video Gallery
      • World Rare Disease Day – 2020
      • World Rare Disease Day – 2019
      • World Rare Disease Day – 2018
  • Blog
  • Contact Us

Countdown Starts for World Rare Disease Day-2023 with Multi-lingual Awareness videos!

    Home IORD Updates Countdown Starts for World Rare Disease Day-2023 with Multi-lingual Awareness videos!
    NextPrevious
    Official video of World Rare Disease Day-2023

    Countdown Starts for World Rare Disease Day-2023 with Multi-lingual Awareness videos!

    By IORD | IORD Updates, Rare Disease News | 0 comment | 15 December, 2022 | 1

    The 100-day countdown for the World Rare Disease Day-2023 celebration, which falls on February 28, has started with the right earnestness.

    This year, for creating awareness among the people, short multi-lingual animation videos in several world languages with subtitles were launched for easy understanding for the local population. They include Indian languages like Hindi, Bengali, Kannada and Telugu.

    While making a call for lighting up in rare colours on 28 February in solidarity with 300 million rare disease patients in the world, the three-minute animation videos highlight the importance of creating equitable opportunities and access to health for all rare disease patients.

    In the absence of the right health infrastructure, expertise and empathy, a rare disease patient is more likely to experience misdiagnosis, treatment inequality and isolation.

    IORD, Rare Disease, Rare Disease Day, World Rare Disease Day, World Rare Disease Day 2023

    IORD

    More posts by IORD

    Related Post

    • Telangana Health Minister Eatela Rajender Attends World Rare Disease Day in Hyderabad

      By IORD | 0 comment

      Source: Vaartha https://www.vaartha.com/telangana/ts-minister-etala-rajender-attends-world-rare-disease-day-event/Read more

    • Telangana Health Minister Eatala Rajender Says Need To Maintain Data On Rare Diseases

      By IORD | 0 comment

      Hyderabad: As much as 90 per cent of patients affected with rare diseases are from middle class, said Eatala Rajender, the Health Minister of Telangana, at the one-day conference on rare diseases here on Friday.Read more

    • World Rare Disease Day 2020 in Hyderabad

      By IORD | 0 comment

      Telangana State Health Minister Eatela Rajender Attends World Rare Disease Day 2020 in Hyderabad Source: Eenadu https://www.eenadu.net/latestnews/Etela-Speech-at-public-gardens-hyderabad/1600/120028427Read more

    • Hyderabad Observes World Rare Disease Day

      By IORD | 0 comment

      World Rare Disease Day was observed on Friday, here at Hyderabad Millions of people around the world observe Rare Disease Day on the last day of February. “Some rare diseases, such as cystic fibrosis, thalassemia,Read more

    • IORD hosts webinar on ‘Rare Diseases Prevention’

      By IORD | 0 comment

      The Indian Organization for Rare Diseases (IORD) – a not-for-profit umbrella organisation – hosted a webinar on ‘Rare Diseases: Prevention’ with top global speakers on February 2, 2021. The topic assumes significance, as the estimatedRead more

    NextPrevious

    Categories

    • ANI
    • Deccan Chronicle
    • Economic Times
    • Eenadu
    • Events
    • IORD in News
    • IORD Updates
    • News
    • Pharmabiz.com
    • Rare Disease News
    • Telangana Today
    • The Hans India
    • The Hindu
    • The Pioneer
    • Times Now
    • Times of India
    • Uncategorised
    • Vaartha

    Recent Posts

    • My Battle with Porphyria: Why Jagruti Urges Nationwide Access to Hemin
    • May 2025: Rare Disease Updates, New Discoveries, Diagnostics, and Therapies
    • 78th WHA Takes Historic Step with Rare Diseases Resolution, 10-Year Global Plan Approved
    • India’s Rare Disease Crisis: Why Grassroots Solutions Are Urgently Needed
    • Advancing Rare Disease Awareness in India: Dr. Ramaiah Muthyala’s Strategic Insights

    Archives

    • June 2025
    • May 2025
    • April 2025
    • March 2025
    • February 2025
    • January 2025
    • December 2024
    • November 2024
    • September 2024
    • July 2024
    • June 2024
    • May 2024
    • March 2024
    • February 2024
    • December 2023
    • October 2023
    • July 2023
    • June 2023
    • May 2023
    • April 2023
    • March 2023
    • February 2023
    • January 2023
    • December 2022
    • November 2022
    • October 2022
    • September 2022
    • August 2022
    • June 2022
    • May 2022
    • April 2022
    • March 2022
    • February 2022
    • January 2022
    • December 2021
    • November 2021
    • October 2021
    • September 2021
    • July 2021
    • May 2021
    • April 2021
    • November 2020
    • March 2020
    • February 2020
    • January 2020
    • February 2019
    • January 2018
    • September 2015

    Follow Us

    IORD

    Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

    RARE DISEASES

    • Rare Blood Diseases
    • Rare Heart Diseases
    • Rare Fungal Diseases
    • Rare Kidney Diseases
    • Rare Newborn Diseases
    • more...

    SERVICES

    • Research
    • Let's Come Together
    • Partner With Us
    • Volunteers
    • Privacy Policy
    • Sitemap

    CONTACT US

    Indian Organization For Rare Diseases
    Reg. Office (India): Plot 397, Road 22b, Jubilee Hills, Hyderabad (Telangana) 500033, Telangana, India

    Phone: +91-9666438880

    Email: indiaord@gmail.com

    © 2020 Indian Organization For Rare Diseases | All Rights Reserved. Powered By Digital Dynamics
    • Home
    • About Us
      • Management Committee
      • Advisory Board
      • Newsletters
      • Newsletter Subscription
    • Rare Diseases
    • Research
    • Services
    • Donate
    • Gallery
      • Photo Gallery
        • World Rare Disease Day – 2023
        • World Rare Disease Day 2020
      • Video Gallery
        • World Rare Disease Day – 2020
        • World Rare Disease Day – 2019
        • World Rare Disease Day – 2018
    • Blog
    • Contact Us
    IORD – Indian Organization for Rare Diseases