Hyderabad: As much as 90 per cent of patients affected with rare diseases are from middle class, said Eatala Rajender, the Health Minister of Telangana, at the one-day conference on rare diseases here on Friday. The minister also said that the government had formulated a policy for ‘rare diseases’ and that there was a needRead more
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Telangana State Health Minister Eatela Rajender Attends World Rare Disease Day 2020 in Hyderabad Source: Eenadu https://www.eenadu.net/latestnews/Etela-Speech-at-public-gardens-hyderabad/1600/120028427Read more
You are not alone as we all are one! Doctors, Survivors, Expert Speakers, Healthcare Staff, Patients’ Organizations, Rare Disease Patients, Researchers, Policy Makers, Rare Disease Volunteers, Parents and Students enthusiastically participated in IORD’s conference on “Raising The Awareness: Prevention of Rare Diseases” in Hyderabad on 28 February 2020. That’s the takeaway from Indian Organization forRead more
World Rare Disease Day was observed on Friday, here at Hyderabad Millions of people around the world observe Rare Disease Day on the last day of February. “Some rare diseases, such as cystic fibrosis, thalassemia, hemophilia, and Lou Gehrig’s disease ( ALS ), are well known to the public. India has already taken steps toRead more