Registrations are now open for the 12th European Conference on Rare Diseases & Orphan Products (ECRD), scheduled to take place on May 15-16, 2024, at The Square venue in Brussels.
Said to be one the largest patient-led events in the rare disease field, the hybrid conference would facilitate collaborative dialogue, learning, and conversation. It serves as a platform for shaping rare disease policies and fostering important and innovative discussions on both national and international levels.
The non-profit Indian Organization for Rare Diseases is honoured to serve as one of the Outreach Partners for the upcoming ECRD-2024, which will be held both online and in-person in Brussels on May 15-16, 2024.
ECRD-2024 Importance:
With the European elections approaching, marking the inception of a new term for the European Parliament and the European Commission, the 12th ECRD becomes a key driver in shaping policies to address the unique needs of people with rare diseases and their families over the next five years.
What sets the ECRD apart is its integration into broader rare disease policy and healthcare ecosystem efforts. Rooted in the recommendations of the Rare 2030 Foresight Study, the ECRD continues to build on this comprehensive review of the strategy for rare diseases and shape the thinking of policymakers and the community, encouraging a more streamlined and proactive approach to addressing the unmet needs of people living with rare diseases and the persisting inequalities across Europe.
Key sessions at ECRD 2024 will include:
- Revolutionising Funding Strategies for Breakthrough Therapies in Rarer Diseases
- No Health without Mental Health! Let’s Co-create a Mental Health and Wellbeing Toolkit
- The Path Forward for Equitable Diagnosis
- Achieving Full Reach: Overcoming the Last Challenges to Access Highly Specialised Care
- Innovative Therapies, Unequal Access: Bridging Gap for Rare Disease Treatments
- National Plans: Exchanging Best Practices to Forge a Unified European Response to Rare Disease
Why Participate in ECRD 2024 Online?
- Using the event’s virtual platform, you can join ECRD from anywhere you wish, with the possibility to re-watch on-demand sessions at your convenience.
- Direct from your desk – participate in sessions run by leading experts built around 6 topics. Over 30 chairs and speakers will lead interactive sessions and be available to answer questions.
- Professional moderators dedicated to online participants will ensure your voice is heard throughout the conference and provide you with equal opportunity to engage.
- Special online registration fees are available for all stakeholder groups to take part!
- Closed captioning will be available in 12 languages and throughout all official sessions. Languages include: Czech, Danish, Dutch, French, German, Greek, Hungarian, Italian, Polish, Portuguese, Romanian and Spanish.
- Access to hundreds of multimedia ECRD posters.
- The online platform is being built to guarantee online networking opportunities with speakers and fellow conference participants, as well as with representing poster authors.
Why Participate in ECRD 2024 On-site?
- Connect with patient advocates, researchers, clinicians, industry representatives and experts in the rare diseases field, fostering collaborations and expanding your network.
- Stay updated on the latest research, advancements, and best practices in rare diseases through on-site sessions and the poster exhibition.
- Brussels, as the “Capital of Europe,” is centrally located and well-connected, making it easily accessible for participants from various European countries and beyond to join on-site.
- Get ready for a memorable experience with moments of surprise and delight awaiting you!
ECRD REGISTRATIONS https://www.rare-diseases.eu/register
POSTER ABSTRACT SUBMISSIONS (until 23/02) https://www.rare-diseases.eu/posters
For more information, please visit European Conference on Rare Diseases – ECRD2024 (rare-diseases.eu)
VENUE: The Square venue in Brussels
DATE: 15 – 16 May 2024
