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Home Search results for "Rare genetic diseases"
The following is an excerpt from a panel discussion on Muscular Dystrophy by medical experts and members of BharathMD Foundation, a Parent Advocacy Organization of Muscular Dystrophy. The insights shared during this discussion highlight the importance of awareness, early diagnosis, and access to resources for families navigating the challenges of Muscular Dystrophy.

Muscular Dystrophy Complexities: Insights from Experts and Parent Advocacy Group

By IORD | IORD Updates, Rare Disease News | 0 comment | 19 September, 2024 | 0

The following is an excerpt from a panel discussion on Zee Telugu on Muscular Dystrophy featuring medical experts and members of the BharathMD Foundation, a parent advocacy organization for Muscular Dystrophy. The insights shared during this discussion highlight the importance of awareness, early diagnosis, and access to resources for families navigating the challenges of MuscularRead more

GST Relief on Rare Disease Drugs Import & Food for Special Medical Purposes for Personal Use, Pharma Sector says Not Enough

GST Relief on Rare Disease Drugs Import, Pharma Sector & RD Kin Say Not Enough

By IORD | IORD Updates, News, Rare Disease News | 0 comment | 18 July, 2023 | 0

The GST Council in its 50th meeting on exempted the Integrated Goods and Services Tax (IGST) on medicines and Food for Special Medical Purposes (FSMP) used for personal use & treatment of rare diseases enlisted under the National Policy for Rare Diseases, 2021. The meeting was chaired by Union Finance and Corporate Affairs Minister SmtRead more

INTERVIEW: Prof Ramaiah Muthyala, President & CEO of Indian Organization for Rare Diseases (IORD), discusses with Pharma Intelligence about central government's exemption of customs duty for importing drugs and food items for treating rare diseases

Interview: IORD CEO Prof Ramaiah Muthyala on Customs Exemptions for Rare Disease Drugs

By IORD | IORD in News, IORD Updates, News, Rare Disease News | 0 comment | 8 May, 2023 | 0

The following is an excerpt from an interview conducted by Pharma Intelligence with Prof Ramaiah Muthyala, President & CEO of Indian Organization for Rare Diseases (IORD), on central government’s exemption of customs duty on imported drugs and food items recommended for special medical purposes to treat rare diseases. You can read the complete story writtenRead more

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IORD

Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

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Indian Organization For Rare Diseases
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  • Blog
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IORD – Indian Organization for Rare Diseases