The following is an excerpt from a three-part interview series featuring IORD CEO & President Prof. Ramaiah Muthyala. In this segment, he speaks with Health Issues India about the pressing need to raise rare disease awareness across India and offers key recommendations to improve early diagnosis, train frontline healthcare workers, and integrate rare diseases intoRead more
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- India’s Rare Disease Crisis: Why Grassroots Solutions Are Urgently Needed
- Advancing Rare Disease Awareness in India: Dr. Ramaiah Muthyala’s Strategic Insights
- From Policy to Patients: Addressing Gaps in Rare Disease Care
- Kakatiya Medical College Shines at AFMC Annual UG Medical Research Conference in Pune
- Prof. Ramaiah Muthyala Calls for Policy Reforms at World Orphan Drug Congress-2025
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
Reg. Office (India): Plot 397, Road 22b, Jubilee Hills, Hyderabad (Telangana) 500033, Telangana, India
Phone: +91-9666438880
Email: indiaord@gmail.com