Prof. Ramaiah Muthyala discussed challenges and solutions for rare disease access at the 2025 World Orphan Drug Congress in Boston. He highlighted the global economic burden of rare diseases and the unique barriers in low- and middle-income countries. Efforts in India to reduce orphan drug costs, including the availability of Hydroxyurea for sickle cell diseaseRead more
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- Prof. Ramaiah Muthyala Calls for Policy Reforms at World Orphan Drug Congress-2025
- India Fast-Tracks Orphan Drug Imports: Port Testing Waived to Boost Patient Access
- OGH Makes History with Rare Liver Transplant
- RJS PBH Webinar: Prof. Ramaiah Muthyala’s Keynote on World Health Day 2025
- World Rare Disease Day 2025: IORD Advocates for Policy & Awareness
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
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Indian Organization For Rare Diseases
Reg. Office (India): Plot 397, Road 22b, Jubilee Hills, Hyderabad (Telangana) 500033, Telangana, India
Phone: +91-9666438880
Email: indiaord@gmail.com