The RDI Regional Webinar on “From the WHA Resolution to Action: Next Steps for Asia Pacific” marked a pivotal moment for regional cooperation on rare diseases. “Hope” — that was the word chosen by Dr. Krishnaji Rao, Secretary, Indian Organisation for Rare Diseases (IORD), when asked what unites Asia-Pacific’s rare disease community. Speaking atRead more
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Prof. Ramaiah Muthyala discussed challenges and solutions for rare disease access at the 2025 World Orphan Drug Congress in Boston. He highlighted the global economic burden of rare diseases and the unique barriers in low- and middle-income countries. Efforts in India to reduce orphan drug costs, including the availability of Hydroxyurea for sickle cell diseaseRead more