The following is an excerpt from a three-part interview series featuring IORD CEO & President Prof. Ramaiah Muthyala. In the first part, he speaks to Health Issues India on rare disease care in India and highlights NPRD’s progress, persistent gaps in diagnosis, treatment, and the need for disease-specific approaches. Read more at healthissuesindia.com RareRead more
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- India’s Rare Disease Crisis: Why Grassroots Solutions Are Urgently Needed
- Advancing Rare Disease Awareness in India: Dr. Ramaiah Muthyala’s Strategic Insights
- From Policy to Patients: Addressing Gaps in Rare Disease Care
- Kakatiya Medical College Shines at AFMC Annual UG Medical Research Conference in Pune
- Prof. Ramaiah Muthyala Calls for Policy Reforms at World Orphan Drug Congress-2025
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IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
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Indian Organization For Rare Diseases
Reg. Office (India): Plot 397, Road 22b, Jubilee Hills, Hyderabad (Telangana) 500033, Telangana, India
Phone: +91-9666438880
Email: indiaord@gmail.com