New policy lifts mandatory port testing for orphan drugs, accelerating treatment availability for rare disease patients. New Delhi: In a significant policy shift aimed at ensuring quicker access to life-saving treatments, the Government of India has exempted orphan drugs from mandatory sampling and testing at port offices. The Central Drugs Standard Control Organisation (CDSCO) announcedRead more
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Telangana Chief Minister A. Revanth Reddy praised Osmania General Hospital for successfully saving a youth’s life through a complex surgery. In a historic medical achievement, doctors at Osmania General Hospital (OGH), Hyderabad, successfully performed a living donor liver transplant on a 14-year-old boy suffering from rare Marfan Syndrome compounded by very severe Hepatopulmonary Syndrome (HPS)Read more
The following is the transcript of the address delivered by Prof. (Dr.) Ramaiah Muthyala, President & CEO, Indian Organization for Rare Diseases (IORD), Professor & Director, University of Minnesota, USA on the theme “Healthy Beginnings, Hopeful Futures: Rare Diseases and the Global Call to Action”, presented during the 342nd International Webinar organized by RJS PBHRead more