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Home 2025 February
Registration is now open for World Rare Disease Day-2025 Conference, organized by the Indian Organisation for Rare Diseases (IORD) at FORTUNE Murali Park, Vijayawada in Andhra Pradesh on 28 February, 2025

Registration is now open for IORD World Rare Disease Day-2025

By IORD | IORD Updates, Rare Disease News | 0 comment | 18 February, 2025 | 0

Registration is now open for World Rare Disease Day-2025 Conference, organized by the Indian Organisation for Rare Diseases (IORD) at FORTUNE Murali Park, Vijayawada in Andhra Pradesh on 28 February, 2025. This significant event aims to advance healthcare innovation, address rare diseases, and strengthen collaborative efforts in public health. To register for the conference, pleaseRead more

The Indian Organization for Rare Diseases (IORD) and the Ram-Janaki Institute Positive Broadcasting House (RJS PBH) have initiated a 20-day awareness campaign to highlight the challenges faced by individuals with rare diseases. The campaign, inaugurated by Professor (Dr.) Ramayya Muthyala, President and CEO of IORD, aims to raise awareness ahead of World Rare Disease Day on February 28, 2025.

IORD-RJS Launches 20-Day Rare Disease Awareness Campaign

By IORD | Events, IORD Updates, Rare Disease News | 0 comment | 9 February, 2025 | 0

New Delhi: In the run up to the World Rare Disease Day 2025 on 28 February, a 20-day awareness campaign for rare diseases was launched by the Ram-Janki Institute Positive Broadcasting House (RJS PBH), led by Founder and National Coordinator Uday Kumar Manna. The event – starting with a webinar on “Urgent need for aRead more

A webinar titled on the Urgent Need for a Unified Approach to Tackle Rare Diseases in India is being organized jointly by RJS PBH - RJS Positive Media and the Indian Organisation for Rare Diseases (IORD) on February 9 at 11.00 AM.

Join Expert-Led RJS PBH Webinar on Rare Diseases on 9th Feb

By IORD | Events, IORD Updates | 0 comment | 5 February, 2025 | 0

A webinar titled on the “Urgent Need for a Unified Approach to Tackle Rare Diseases in India” is being organized jointly by RJS PBH – RJS Positive Media and the Indian Organisation for Rare Diseases (IORD) on February 9 at 11.00 AM. This event marks a significant step towards addressing the challenges posed by rareRead more

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Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

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    • Photo Gallery
      • World Rare Disease Day – 2023
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      • World Rare Disease Day – 2020
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      • World Rare Disease Day – 2018
  • Blog
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IORD – Indian Organization for Rare Diseases