The following is an excerpt from a panel discussion on Zee Telugu on Muscular Dystrophy featuring medical experts and members of the BharathMD Foundation, a parent advocacy organization for Muscular Dystrophy. The insights shared during this discussion highlight the importance of awareness, early diagnosis, and access to resources for families navigating the challenges of MuscularRead more
Categories
Recent Posts
- Prof. Ramaiah Muthyala Calls for Policy Reforms at World Orphan Drug Congress-2025
- India Fast-Tracks Orphan Drug Imports: Port Testing Waived to Boost Patient Access
- OGH Makes History with Rare Liver Transplant
- RJS PBH Webinar: Prof. Ramaiah Muthyala’s Keynote on World Health Day 2025
- World Rare Disease Day 2025: IORD Advocates for Policy & Awareness
Archives
- May 2025
- April 2025
- March 2025
- February 2025
- January 2025
- December 2024
- November 2024
- September 2024
- July 2024
- June 2024
- May 2024
- March 2024
- February 2024
- December 2023
- October 2023
- July 2023
- June 2023
- May 2023
- April 2023
- March 2023
- February 2023
- January 2023
- December 2022
- November 2022
- October 2022
- September 2022
- August 2022
- June 2022
- May 2022
- April 2022
- March 2022
- February 2022
- January 2022
- December 2021
- November 2021
- October 2021
- September 2021
- July 2021
- May 2021
- April 2021
- November 2020
- March 2020
- February 2020
- January 2020
- February 2019
- January 2018
- September 2015
IORD
Indian Organization For Rare Diseases
(IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.
CONTACT US
Indian Organization For Rare Diseases
Reg. Office (India): Plot 397, Road 22b, Jubilee Hills, Hyderabad (Telangana) 500033, Telangana, India
Phone: +91-9666438880
Email: indiaord@gmail.com