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Home 2021 December
UN Resolution on Rare Disease

UN General Assembly Adopts Resolution on Rare Disease at its 76th Session

By IORD | Rare Disease News | 0 comment | 22 December, 2021 | 0

In a historic first, the UN General Assembly adopted a resolution for “Addressing the challenges of persons living with a rare disease and their families” at its 76th Session on December 16, 2021. The landmark resolution – which calls UN member states to achieve universal health coverage by 2030 for all including persons living withRead more

Ataxia Awareness Society

AAS to Host Webinar on Ataxia on 18 Dec

By IORD | Events | 0 comment | 14 December, 2021 | 0

The Ataxia Awareness Society (AAS) – an NGO dedicated to spread awareness about the rare disease, help the sufferers and encourage research in this field – is organising a webinar on Ataxia on 18th December (Saturday) at 7:30 PM IST. Being organised in collaboration with the Indian Organisation for Rare Diseases (IORD) & AAS, theRead more

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Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

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IORD – Indian Organization for Rare Diseases