+91-9666438880
indiaord@gmail.com
IORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare DiseasesIORD – Indian Organization for Rare Diseases
  • Home
  • About Us
    • Management Committee
    • Advisory Board
    • Newsletters
    • Newsletter Subscription
  • Rare Diseases
  • Research
  • Services
  • Donate
  • Gallery
    • Photo Gallery
      • World Rare Disease Day – 2023
      • World Rare Disease Day 2020
    • Video Gallery
      • World Rare Disease Day – 2020
      • World Rare Disease Day – 2019
      • World Rare Disease Day – 2018
  • Blog
  • Contact Us

Grid 2 Columns

  • Classic Blog Right Sidebar
  • Grid Right Sidebar
  • Grid Left Sidebar
  • Masonry 3 columns
  • Masonry 2 columns
  • Masonry 4 Columns
  • Grid 2 Columns
  • Grid 3 Columns
  • Grid 4 Columns
  • Masonry Left Sidebar
  • Masonry Right Sidebar
  • Multi Author Right Sidebar
  • Multi Author Left Sidebar
  • Multi Author Layout
  • Masonry Full Width
  • Grid Full Width
Home Blog Grid 2 ColumnsPage 8
Delhi High Court orders constitution of 5-member committee for Implementing National Rare Disease Policy, 2021

Delhi High Court Appoints 5-member committee for Implementing Rare Disease Policy, 2021

By IORD | 0 comment
In a significant development for the entire rare disease community and stakeholders in India, the Delhi High Court has ordered steps for implementing the National Rare Disease Policy, 2021 formulated
Read more
Boosting Rare Disease Advocacy: India Approves National Medical Devices Policy to Drive Growth and Innovation

IORD Advocacy: Rare Diseases get focus in New Medical Devices Policy

By IORD | 0 comment
When the Union Cabinet, chaired by Prime Minister Shri Narendra Modi, approved the National Medical Devices Policy, 2023 on April 26, it came as a shot in the arm for rare disease advocacy Indian Orga
Read more
INTERVIEW: Prof Ramaiah Muthyala, President & CEO of Indian Organization for Rare Diseases (IORD), discusses with Pharma Intelligence about central government's exemption of customs duty for importing drugs and food items for treating rare diseases

Interview: IORD CEO Prof Ramaiah Muthyala on Customs Exemptions for Rare Disease Drugs

By IORD | 0 comment
The following is an excerptfrom an interviewconducted by Pharma Intelligence with Prof Ramaiah Muthyala, President &CEO of Indian Organization for Rare Diseases (IORD), on centralgovernment's exem
Read more
BioSpectrum Interviews Ramaiah Muthyala, President and CEO, Indian Organisation for Rare Diseases

Rare Diseases Needn’t Be Neglected Anymore

By IORD | 0 comment
The following is an excerpt from an interview of Dr Ramaiah Muthyala, President and CEO, Indian Organisation for Rare Diseases published by BioSpectrum in its April 2023 edition. It an English languag
Read more
Customs Duty Waived on Import of Rare Disease Drugs & Special Food

IORD Advocacy: Customs Duty Waived on Import of Rare Disease Drugs & Special Food

By IORD | 0 comment
Thanks tothe concerted efforts of national advocacy Indian Organization for RareDiseases (IORD) towards the needs of rare disease patients and the community atlarge, the union finance ministry has now
Read more
Indian Organization for Rare Diseases (IORD), a not-for-profit national advocacy organization, working for the cause of patients with rare diseases, spanning over the last fifteen years, hosted the awareness Bikeathon and Walkathon, to commemorate the World Rare Disease Day-2023, in association with the Government of Telangana.

Cycle For Rare: IORD’s Bikeathon, Walkathon for Rare Disease Draws Huge Response

By IORD | 0 comment
It was a pleasant morning and the sun was barely up on the Sunday ofFebruary 26th when cyclists from all over the city gathered at the startingline of the bikeathon for rare disease awareness at Neckl
Read more
World Rare Disease Day 2023

Cycle For Rare

By IORD | 0 comment
Join us to be the voice of 300 million affected people worldwide on World Rare Disease Day-2023. The not-for-profit Indian Organization for Rare Diseases (IORD) is excited to invite you all to an awar
Read more
Budget 2023: India Announces Elimination of Rare Sickle Cell Disease by 2047

Mission Mode: India to Screen 7 Crore Tribals for Sickle Cell Disease in 200 Districts

By IORD | 0 comment
In a first of its kind comprehensive plan for management of any rare disease in India, the Union Finance minister Nirmala Sitharaman in her Budget 2023 presentation announced that the government would
Read more
union health ministry notifies new centre of excellence for rare disease Treatment in kerala

Kerala’s SAT Hospital becomes 11th Centre of Excellence for Rare Disease Treatment

By IORD | 0 comment
The Union Health Ministry has designated Kerala's Sree Avittam Thirunal Hospital (SAT) hospital, Government Medical College, Thiruvananthapuram, as a centre of excellence (CoE) for treating rare
Read more
Delhi High Court directs Centre to release Rs 5.35 crore to fund clinical trials for DMD

Delhi High Court directs Centre to release Rs 5.35 crore to fund clinical trials for DMD

By IORD | 0 comment
The court direction – given on 22 December 2022 – came following a batch of petitions filed by parents of children suffering from rare diseases such as DMD and hunter syndrome.In a relief for scores o
Read more
678910

IORD

Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

RARE DISEASES

  • Rare Blood Diseases
  • Rare Heart Diseases
  • Rare Fungal Diseases
  • Rare Kidney Diseases
  • Rare Newborn Diseases
  • more...

SERVICES

  • Research
  • Let's Come Together
  • Partner With Us
  • Volunteers
  • Privacy Policy
  • Sitemap

CONTACT US

Indian Organization For Rare Diseases
Registered Office (India):
Plot No. 397, Road No. 22B, Jubilee Hills, Hyderabad – 500033, Telangana, India.

Phone: +91-9666438880

Email: indiaord@gmail.com

© 2020 Indian Organization For Rare Diseases | All Rights Reserved. Powered By Digital Dynamics
  • Home
  • About Us
    • Management Committee
    • Advisory Board
    • Newsletters
    • Newsletter Subscription
  • Rare Diseases
  • Research
  • Services
  • Donate
  • Gallery
    • Photo Gallery
      • World Rare Disease Day – 2023
      • World Rare Disease Day 2020
    • Video Gallery
      • World Rare Disease Day – 2020
      • World Rare Disease Day – 2019
      • World Rare Disease Day – 2018
  • Blog
  • Contact Us
IORD – Indian Organization for Rare Diseases