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The following excerpt is from a Times Now news story dated July 4, 2024, highlighting the challenges in addressing the unavailability of orphan drugs in India, despite the country's successful development of COVID vaccines. It features insights from Prof. Ramaiah Muthyala, CEO & President of IORD.

Despite COVID Vaccine Success, Why India Lags in Rare Disease Drug Attention?

By IORD | 0 comment
The following excerpt is from a Times Now news story dated July 4, 2024, highlighting the challenges in addressing the unavailability of orphan drugs in India, despite the country's successful develop
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The following excerpt is from an Economic Times news story dated June 23, 2024, discussing the policy hurdles affecting high cost for orphan drugs in India. It features Prof. Ramaiah Muthyala, CEO & President of IORD.

High costs of orphan drugs: Patients pay the price for policy hurdles in India

By IORD | 0 comment
The following excerpt is from an Economic Times news story dated June 24, 2024, discussing the policy hurdles affecting the unavailability of orphan drugs in India, featuring Prof. Ramaiah Muthyala, C
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The following excerpt is from a Times of India news story dated June 23, 2024, discussing the unavailability of orphan drugs in India, featuring Prof. Ramaiah Muthyala, CEO & President of IORD.

India key market for APIs, but patients still paying crores to buy orphan drugs

By IORD | 0 comment
The following excerpt is from a Times of India news story dated June 23, 2024, discussing the unavailability of orphan drugs in India, featuring Prof. Ramaiah Muthyala, CEO & President of IORD. HY
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Registration is now open for the 16th ICORD Annual Meeting in Argentina. Interested rare disease stakeholders, including professionals and researchers from around the world, are invited to join the 16th Annual ICORD meeting for meaningful discourse and valuable insights.

ICORD to Host its 16th Annual Meeting in Argentina on July 24-25

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The Indian Organisation for Rare Diseases is an institutional partner of ICORD.Buenos Aires: The 16th ICORD Annual Meeting, themed "Incentivizing Science and a Comprehensive Program for Rare Diseases,
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WHO Grants ‘Official Relations’ Status to Rare Diseases International. It Will Help Enhance Collaboration With WHO to Enhance Healthcare Access for Rare Disease Community

Rare Diseases International Gains WHO Recognition, Granted “Official Relations” Status

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Indian Organization for Rare Diseases (IORD) is a full member of Rare Disease International (RDI)Geneva: In a notable achievement for the global rare disease fraternity, Rare Diseases International (R
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While India’s pharmaceutical industry is predicted to reach $100 billion by 2025, access to rare disease drugs is still a major problem in India, where local and imported orphan medicine prices fluctuate significantly with huge cost differences.

Made in India, Missing in India: The Orphan Drug Access Challenge

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By 2025, Indian pharmaceutical industry in the nation is predicted to reach $100 billion. Boston, USA: Even though India produces all 450 of the world's orphan medications (APIs), the majority of thes
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Rare disease centers of excellence utilized only 48.7% of the allotted funds in the last three years

Rare Disease Centers of Excellence Grapple with Funds Underutilization

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Delhi: Patients' advocacy groups have called for the health ministry to implement a mechanism to streamline the utilisation of rare disease funds and ensure as many lives as possible are saved after i
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Introductory speech made by IORD CEO & President Prof Ramaiah Muthyala at World Rare Disease Day-2024 conference organized by IORD at IMA Hall, Khammam on March 3.

World Rare Disease Day-2024: The Journey from Awareness to Action

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The following is a translated excerpt from the speech made by IORD CEO & President Prof Ramaiah Muthyala at World Rare Disease Day-2024 conference organized by IORD at IMA Hall, Khammam on March 3
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quality healthcare and assistance should be accessible to all individuals, irrespective of their health status: Prof Ramaiah Muthyala

Patients with rare diseases deserve quality healthcare and support: Prof. Ramaiah

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The following is an excerpt from a news story on IORD's World Rare Disease Day-2024 event published in Telangana Today newspaper.Khammam: Everyone, regardless of their health condition deserves access
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IORD hosts conference to mark world rare disease day-2024 at Khammam

World Rare Disease Day-24: IORD Hosts Rare Disease Awareness Conference in Khammam

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Rare Disease Epidemic: 90 million Indians among 300 million globally affected with no cure in sight!Non-profit Indian Organization for Rare Diseases (IORD) Hosts Conference on Rare Disease Awareness w
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IORD

Indian Organization For Rare Diseases (IORD), a not-for-profit umbrella organization represents interests of all stakeholders of Rare Diseases in India including individual patients, patient support groups, health policy advocates and health care providers.

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  • Home
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      • World Rare Disease Day – 2023
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      • World Rare Disease Day – 2020
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  • Blog
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IORD – Indian Organization for Rare Diseases