This has hit the patients who are suffering from rare diseases like thalassemia, sickle cell anaemia, lysosomal storage disorders, Hirschsprung’s disease, Gaucher’s disease, cystic fibrosis, haemangio
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Hyderabad: Members of the Indian Organization of Rare Diseases (IORD), an umbrella organisation representing patients and patient groups of rare diseases have sent a proposal to the Centre that a ques
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Hyderabad: While the Centre has made attempts to address the problem of rare diseases and even finalised a draft policy for rare diseases, experts say that the draft has completely missed out on cover
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Citing space constraints in Census questionnaires and increase in workload of already-overworked enumerators with data related works, the Registrar General of India has turned down the proposal of the
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Rama was born normal. By the time she was six, her life underwent catastrophic events — blindness, breathing problems, asthma, growth problems. These resulted in consultations with multiple doctors an
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Prof. Ramaiah Muthyala delivering a talk on rare diseases in India, in Visakhapatnam on Monday. — PHOTO: C.V. SUBRAHMANYAM This is the era of genetics and not IT anymore, asserted a professor from Uni
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